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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | ||
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Quote:
I have RSD in my foot (specifically my big toe) and I take 1800 mg of neurontin a day for my "mild" RSD. It has worked very well. My side effects are limited to a bit of drymouth and a little drowsiness, both of these side effects have lessened over time. My podiatrist tried weaning me off the neurontin and the pain came back, slowly....but within a few weeks. Life WITH neurontin for me is much better than without it! Getting another opinion is always a good idea because of the rarity of the disorder, the complexity of it, and difficulty to personalize a treatment plan. My primary doctor for my RSD is my podiatrist who is pretty familiar with RSD/CRPS, but I also see a pain management doctor. These two consult with each other and on the same page as far as your treatment. There are a lot of things that can help you but you need to adopt a methodical testing strategy of these things with the help of professionals that have a good fundamental understanding of the disorder. Good luck! |
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#12 | ||
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Senior Member
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Just wanted to add........
Please never think it's rude to jump in with questions.....That's what we are here for ! I get some relief with 2400mg of Neurontin. I still require narcotics too. |
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#13 | |||
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Member
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I am highly allergic to Neurontin. I hallucinate and slur my words and it makes my skin crawl...Lyrica is much worse for me and the reaction is VERY severe. I do better with antidepressants, xanax and hydrocodone....I hope everything works out for you
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