Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-30-2010, 05:02 PM #1
SandyS SandyS is offline
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Default Cymbalta?

Well today my Lindsays pm put her on Cymbalta. The Nucinta did not work. Has anyone had any results with Cymbalta?? Is it helpful? Lindsay is turning 17 next week. I feel like she has had such a crappy hand in this life. I am hoping that Cymbalta will help her. Do you have any side effects that I should watch for?
Any information will help. I did google it, but hardly any information on RSD.

Thanks in advance for any information.
Sandy
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Old 04-30-2010, 05:16 PM #2
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CYMBALTA IS A LIFESAVER!!!! I really dont know how I lived without it. My friend who is 17 is on it for rsd... and it just keeps us in such a better mood fighting the pain everyday... occasionally I will sweat at night... but the pros are BY far superior than the cons... 60 mg is for pain... 120 is depression.

Cymbalta I definately recommend it. i have been on it for almost a year, and I know when i started taking it it definately helped me be able to have more energy to manage my relationships and friendships better.... what it does is it increases seratonin I believe in the brain which is for depression, but is your bodys way of fighting pain and thats why my doctor likes it for rsd.

Best of luck to her!
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Old 04-30-2010, 08:02 PM #3
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I found out about cymbalta about 1 year ago. It has helped my burning pain so much. I just heard somewhere on the news last week that the FDA is approving advertising of cymbalta for nerve pain. Hope it helps your daughter too. Keep us posted. Fondly-Carol
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Old 04-30-2010, 08:34 PM #4
AintSoBad AintSoBad is offline
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I take 60 mg. / day of Cymbalta, along with methadone, and a little diazepam, it's a great combination, or cocktail..
It does work for neuropathy type pain, and is a good mood stabilizer.

I've been on it for jeez, four years, when ever it was first introduced, my Neuro put me on it immediately.

Good luck to you, and your daughter!

Pete
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Old 04-30-2010, 08:51 PM #5
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everyone is different with meds.

For me, cymbalta was not good. I had a terrible time urinating when taking it. I worked up to 60mg a day, took it for 2 months and didn't feel any pain relief - but I did become depressed. I felt so much better a couple weeks after stopping it.

We each have to try meds and see how they work. Some will, some won't.

Good luck with it!
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Old 04-30-2010, 10:19 PM #6
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I agree with Hannah cymbalta is a lifesaver !!!! It's changed my mood completely. But hasn't changed the pain but then again I never expected it to. I love love cymbalta !!!
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Old 04-30-2010, 11:49 PM #7
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Default Cymbalta?

Quote:
Originally Posted by SandyS View Post
Well today my Lindsays pm put her on Cymbalta. The Nucinta did not work. Has anyone had any results with Cymbalta?? Is it helpful? Lindsay is turning 17 next week. I feel like she has had such a crappy hand in this life. I am hoping that Cymbalta will help her. Do you have any side effects that I should watch for?
Any information will help. I did google it, but hardly any information on RSD.

Thanks in advance for any information.
Sandy
First, please send our encouragement to Lindsay. I had excellent results with Cymbalta as one of my initial "cocktail" of drugs for which I was prescribed the first three years of my treatment for RSD. Other drugs included in the "cocktail" included Neurontin, Norco, Ketamine, Topamax, and a low dose of Oxy. Unfortunately, I developed a side effect from Cymbalta of total body sweating. I could soak through my clothing within an hour. I went to my specialist after three days of this, and he identified the culprit as Cymbalta. He directed me to stop taking it immediately and the sweating stopped. I am optimistic for Lindsay that Cymbalta will deliver strong, long-term results to her as hopefully one of a group of drugs that her specialist has prescribed. I was disappointed when I had to discontinue its use and the benefit it provided. Happy 17th Birthday to Lindsay next week!
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Old 05-01-2010, 07:07 AM #8
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Default Cymbalta

Quote:
Originally Posted by SandyS View Post
Well today my Lindsays pm put her on Cymbalta. The Nucinta did not work. Has anyone had any results with Cymbalta?? Is it helpful? Lindsay is turning 17 next week. I feel like she has had such a crappy hand in this life. I am hoping that Cymbalta will help her. Do you have any side effects that I should watch for?
Any information will help. I did google it, but hardly any information on RSD.

Thanks in advance for any information.
Sandy
Hi Sandy,

I did try Cymbalta and it was not for me. The sweats where just crazy and it did not help me. But everyone is different and you have got a lot of positive feedback. My only concern is her age,17 is young for a strong drug like that.

I hope Lindsay is feeling the best she can and wish you guys the best. I can somewhat relate to your feellings. I have a 16 year old daughter who we just found out has some pretty serious neuro problems. It hit myself and my husband like a ton of bricks. But we went to the best neuro-peds surgeon in NYC and right now everything is at a standstill. She has a Type 1 Chiari Malformation and a tiny, tiny, lesion/tumor on the temple of her brain. She is functioning normal & may never have to have anything done with either problem. She is being monitored with MRI's every 3 months and so far the lesion has not changed, they are more concerned with the lesion then the Chiari. I think I cried for a week straight. We found this all out in the ER and then had to wait about 3 weeks to see the neuro surgeon. It was the worst 3weeks of my life.

I wish you guys the best. Good Luck...
Gabbycakes
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Old 05-01-2010, 07:38 AM #9
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Hi Gabbycakes,

First and foremost I want to say that I am so sorry that you have to go through this. It is so difficult watching your child suffer and there is nothing that you can do for them. I will pray for you and your daughter. My girl is suffering with a really bad stomach ache, we are going to try some kind of stomach remedy. I heard that ginger helps. Also, the pharmacist said to coat her stomach with mylanta through out the day. If its not one thing its another. Thank you and I hope that all things work out for your daughter.
Sandy


Quote:
Originally Posted by gabbycakes View Post
Hi Sandy,

I did try Cymbalta and it was not for me. The sweats where just crazy and it did not help me. But everyone is different and you have got a lot of positive feedback. My only concern is her age,17 is young for a strong drug like that.

I hope Lindsay is feeling the best she can and wish you guys the best. I can somewhat relate to your feellings. I have a 16 year old daughter who we just found out has some pretty serious neuro problems. It hit myself and my husband like a ton of bricks. But we went to the best neuro-peds surgeon in NYC and right now everything is at a standstill. She has a Type 1 Chiari Malformation and a tiny, tiny, lesion/tumor on the temple of her brain. She is functioning normal & may never have to have anything done with either problem. She is being monitored with MRI's every 3 months and so far the lesion has not changed, they are more concerned with the lesion then the Chiari. I think I cried for a week straight. We found this all out in the ER and then had to wait about 3 weeks to see the neuro surgeon. It was the worst 3weeks of my life.

I wish you guys the best. Good Luck...
Gabbycakes
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Old 05-01-2010, 08:16 AM #10
daniella daniella is offline
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Hi. I am on Cymbalta as well as other meds similar like Neurontin. I started at 30 and worked my way up to 120. My biggest issue in the start was extreme nausea but my pain doc was like give it 2 weeks and that will pass and it did. I took it at dinner to lessen that issue. Now I take it 2 times daily 60 and 60. I am not sure what is helping and what is not. I think for me when Neurontin was added to Cymbalta it helped. I am sorry for your all your daughter is going through. I know this takes a toll on the whole family. When I developed PN and RSD and I am older but it was at 28 the toll it took on my mom was very terrible. I really encourage you to get your own real time support through family and friends too and also do things to perk your spirits in ways that you can. It makes me so happy even when I am in a bad place pain wise if my mom can do something nice for herself. I'm glad you are reaching out here too.
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