Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-01-2010, 10:00 AM #1
keep smilin keep smilin is offline
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Exclamation Ok.. Ins. appeal #3!!! I want need my ketamine!!

Oh let me tell ya..shy little me...



5 people on the committee.. An MVP ins. board of directors - a woman, a Pediatrician, family practice Dr... on and on.. they were quiet... they had reviewed my records before calling me... I am happy with everything I said.. I got it all in..history..interventions tried.. what devastation and debilitating and spreading illness this is...saying RSD cost me my wonderful job of 25yrs, pointed out their recommendation in Burlington was exactly the practice I see here and they do NOT administer Ketamine..I explained the rarity of this but it affects young and old..I explained the money MVP will entail for my RSD health treatment otherwise not having the ketamine, would be more money over time than if they approved my treatment....I pointed out the I paid for the Drexel trip out of my pocket..even saying if I had cancer although that illness is life altering also..they would be very happy to approve chemo or other treatment it would take for extending my life..this is equally devastating. I thanked them for their time, asked if I can answer any of their questions or concerns...I was professional and appreciative. They will get back to me within 5 days with their decision..

I am fighting for us all to receive what we all deserve for treatment... let me at em!!!!!!!

I will keep you all posted!!

Hugz, Kathy
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Old 05-01-2010, 03:05 PM #2
SandyRI SandyRI is offline
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Good Luck to you Kathy!!

XOXOX Sandy


Quote:
Originally Posted by keep smilin View Post
Oh let me tell ya..shy little me...



5 people on the committee.. An MVP ins. board of directors - a woman, a Pediatrician, family practice Dr... on and on.. they were quiet... they had reviewed my records before calling me... I am happy with everything I said.. I got it all in..history..interventions tried.. what devastation and debilitating and spreading illness this is...saying RSD cost me my wonderful job of 25yrs, pointed out their recommendation in Burlington was exactly the practice I see here and they do NOT administer Ketamine..I explained the rarity of this but it affects young and old..I explained the money MVP will entail for my RSD health treatment otherwise not having the ketamine, would be more money over time than if they approved my treatment....I pointed out the I paid for the Drexel trip out of my pocket..even saying if I had cancer although that illness is life altering also..they would be very happy to approve chemo or other treatment it would take for extending my life..this is equally devastating. I thanked them for their time, asked if I can answer any of their questions or concerns...I was professional and appreciative. They will get back to me within 5 days with their decision..

I am fighting for us all to receive what we all deserve for treatment... let me at em!!!!!!!

I will keep you all posted!!

Hugz, Kathy
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Old 05-01-2010, 08:26 PM #3
Lisa in Ohio Lisa in Ohio is offline
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Lisa in Ohio Lisa in Ohio is offline
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Wow Kathy, Boy am I proud of you. I hope that the outcome is positive, and way to go, girl!! Lisa
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Old 05-01-2010, 09:51 PM #4
hope4thebest hope4thebest is offline
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Hi Kathy,
From your summary, it sounds as though you couldn't have said it more thoroughly or more convincingly! You covered every aspect and your presentation is logical and true!!!
There is no reason why they would deny you! I would truly want to know what their reasoning would be, if they considered a denial!
Everything you said is so 'right on!!"
I hope you get good news in the next 5 days !!!!!
Hey, if they had a committee of five people, how come you couldn't have a committee of 5 people!!!! (i'm the one in the middle !!)

I would gladly have been one of them!!!
Hugs to you!
Hope4thebest xox
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Old 05-01-2010, 10:43 PM #5
Skooz Skooz is offline
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Crazy Ok..Ins. appeal #3!!! I want need my ketamine!!

Quote:
Originally Posted by keep smilin View Post
Oh let me tell ya..shy little me...



5 people on the committee.. An MVP ins. board of directors - a woman, a Pediatrician, family practice Dr... on and on.. they were quiet... they had reviewed my records before calling me... I am happy with everything I said.. I got it all in..history..interventions tried.. what devastation and debilitating and spreading illness this is...saying RSD cost me my wonderful job of 25yrs, pointed out their recommendation in Burlington was exactly the practice I see here and they do NOT administer Ketamine..I explained the rarity of this but it affects young and old..I explained the money MVP will entail for my RSD health treatment otherwise not having the ketamine, would be more money over time than if they approved my treatment....I pointed out the I paid for the Drexel trip out of my pocket..even saying if I had cancer although that illness is life altering also..they would be very happy to approve chemo or other treatment it would take for extending my life..this is equally devastating. I thanked them for their time, asked if I can answer any of their questions or concerns...I was professional and appreciative. They will get back to me within 5 days with their decision..

I am fighting for us all to receive what we all deserve for treatment... let me at em!!!!!!!

I will keep you all posted!!

Hugz, Kathy
Kathy,

I am sorry, but sadly not surprised to hear of your troubles. I know that coverage for Ketamine infusions varies by insurer and by state. Coverage can also vary, for example, if your specific provider is in network or out-of-network. Even one part of the procedure (i.e. the physician's expense) can be in network and covered for a Ketamine infusion, but another part of the procedure (i.e. the surgery center expense) can be out-of-network and not covered, depending upon your specific doctor's contract.

I had a Ketamine infusion last year, so I became very familiar with the reimbursement specifics.

Question #1: Who is your insurer?

Question #2: Does your insurer cover Ketamine infusions in all or in part in any state? If the answer is "No", your chance on appeal is low because they will not want to set a precedent for the rest of us. The pre-surgery benefits coordinator in your physician's office can get the answer to this question for you.

Question #3: If your insurer covers Ketamine infusions in another state, is there anything in your plan to preclude you from going to another state where benefits are covered to seek treatment? If not - BINGO - go to that state and have a physician there do the infusion. I think from reading the RSD Association Newsletter that there was a discussion about states where certain insurers covered infusions. I know that if you posted your insurer on this site, there are others who have had infusions covered in all or in part in other states and could point you to physicians in those states.

Reimbursement for Ketamine infusions can be accomplished with creativity. My insurers did not reimburse any portion of mine, but I know that many of our peers have had theirs covered routinely.

Good luck to you, Kathy!

P.S. If you do find a physician with reimbursement, make sure that he is using the protocol per the most recent article published in the RSD Association Newsletter. It is considered the gold standard for infusions and not all physicians performing them are using it. Infusions are a high profit center for M.D.'s, so ask lots of questions and be informed.
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Old 05-02-2010, 06:52 AM #6
keep smilin keep smilin is offline
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Quote:
Originally Posted by Skooz View Post
Kathy,

I am sorry, but sadly not surprised to hear of your troubles. I know that coverage for Ketamine infusions varies by insurer and by state. Coverage can also vary, for example, if your specific provider is in network or out-of-network. Even one part of the procedure (i.e. the physician's expense) can be in network and covered for a Ketamine infusion, but another part of the procedure (i.e. the surgery center expense) can be out-of-network and not covered, depending upon your specific doctor's contract.

I had a Ketamine infusion last year, so I became very familiar with the reimbursement specifics.

Question #1: Who is your insurer?

Question #2: Does your insurer cover Ketamine infusions in all or in part in any state? If the answer is "No", your chance on appeal is low because they will not want to set a precedent for the rest of us. The pre-surgery benefits coordinator in your physician's office can get the answer to this question for you.

Question #3: If your insurer covers Ketamine infusions in another state, is there anything in your plan to preclude you from going to another state where benefits are covered to seek treatment? If not - BINGO - go to that state and have a physician there do the infusion. I think from reading the RSD Association Newsletter that there was a discussion about states where certain insurers covered infusions. I know that if you posted your insurer on this site, there are others who have had infusions covered in all or in part in other states and could point you to physicians in those states.

Reimbursement for Ketamine infusions can be accomplished with creativity. My insurers did not reimburse any portion of mine, but I know that many of our peers have had theirs covered routinely.

Good luck to you, Kathy!

P.S. If you do find a physician with reimbursement, make sure that he is using the protocol per the most recent article published in the RSD Association Newsletter. It is considered the gold standard for infusions and not all physicians performing them are using it. Infusions are a high profit center for M.D.'s, so ask lots of questions and be informed.
Good morning skooz...


Very nice to get your note..my replies to your ins. quesions will probably not be as lengthy but I hope as informative..the name of my ins. company is MVP its thru my former employer.., I mentioned MVP in my post in the very beginning when describing the 5 committee member's responsiblities..the very first on being an MVP board of directors member.. To answer your question about coverage..the big stickler is my insurance considers Ketamnie to be completely experimental.. plain and simple..and yes, Dr. S is out of my network, that does not help, 2nd big stickler but the plain ole' word whether being said as "off the label usage" as Dr. S's office call it or as the ins. company see it ... it is being used as experimental...although it is being referred to as two different usages..Dr. S's office have said they have NEVER had a private ins. company approve this treatment.. but it is worth a shot..MVP will not approve it whether being in NY or Pa., not even portions of it.. Flat out forget it!! 5 day inpatient/10 day outpatient..Heck, they would not even approve my first visit there...consult, I paid for that out of pocket....

But as you can see I am not giving up...Someone has to be a first..and maybe you know but I am the type who puts her ducks in a row..and forces them to swim in a straight line! I also have NYS Ins. review group involved..but they are falling short seeing past the out of network part of it and are agreeing with MVP..as a denial..

I will keep appealing as this is my/our RSD lives I am fighting for.. not theres. Oh and I forgot to put this in my appeal verbage to you but..I also said something to the affect..if I was related to one of you, or you had a wife. husband, child or relative with this hurtful condition..there would be no choice in your mind what should be done for this person!

Hugz, Kathy
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