Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-03-2010, 08:34 AM #11
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I'm glad to read this. I am having both the insane body sweats and the chills, and recently started Cymbalta. I will speak to my doctor about it.

Edited to add: when you get the chills, does your CRPS area seize up painfully? I just want to cry when that happens to me. I think it's another reason that the ceiling fan aggravates my leg so often. But then again, I get so hot and want the fan on, and the skin on my leg hurts to the point where I don't want pants or a sheet on it.

Last edited by peppermintpatty; 05-03-2010 at 08:36 AM. Reason: add'l info/question
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Old 05-03-2010, 09:05 AM #12
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Also Cymbalta is notorious for causing sweating. All the SSRI's and combo SSRI SNRI's cause sweating. The related drug Strattera also (it is a SNRI).

Some people also sweat after taking NSAIDs including aspirin.

Of course opiates cause sweating, and also they depress the hypothalamic axis and reduce hormone production which results in sweating.

Caffeine will do it too! So there are many causes besides blood sugar swings.
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Old 05-03-2010, 11:05 AM #13
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Hi Everyone,

I get the feeling hot and chills often and I am not on Cymbalta. I think my body just can't regulate my temperature. I seem to do this when I'm in a flare. It's drastic hot and cold, but I'm not sweating - like you guys talk about. My husband says that I'm clammy but not temperature hot. I then get the chills. If I thought I was getting them for a typical flu, I would be thinking I have the flu weekly...

I can't seem to find any rhyme or reason to them...

It also depends on the weather outside. If we have drastic changes outside, I have a problem regulating my temperature. In MN, we can have 30 degree swings and in that case I know my body can't handle them and I go into a flare and hot and cold chills...

Of course you could play it safe and get some testing done. I just think for me that it's not related to my blood sugar...

Good Luck...
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Old 05-03-2010, 11:29 AM #14
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Ugh.

I'm with ya on the sweating.....I have to wear tank tops year round and I don't need a winter coat even though I live in New England.
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Old 05-04-2010, 12:59 PM #15
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Default Follow up to my original post with more info - thanks to all for trying to help

Hi again everyone. Thanks to all for taking the time to respond to my post. This follow up reply is a real attempt to try to determine the cause of my total body sweats/chills and to try to find a way to treat them. I am having a hard time finding any concrete documentation about total body sweats/chills being a direct CRPS symptom and if so , how to treat it. I have heard both doctors and patients (including some who responded here) tell me causally that total body sweats/chills are a symptom of CRPS. But when I look for documentation I am having trouble finding any. If anyone knows of a link or other documentation that specifically refers to total body sweats/chills as a CRPS symptom, please reply with the info. Thanks.

In response to those who were kind enough to try to help with their replies to my original post, here is a little more detail about my condition. I am a guy so the female sweating issues don’t apply. My medications are stable and have been for a while. I see my doctors regularly, and I have my blood checked at least every 6 months. I am not diabetic and have been checked multiple times. The pre diabetic Fasting Insulin Test may be worth a try just to rule it out. I am not on Methadone, Lidocaine, Cymbalta, Strattera, Fentanyl, SSRI or SNRI medications. I take Aspirin (not every day) as needed but get sweats/chills both on and off the Aspirin. I avoid caffeine. I could have a food intolerance or allergy, but I get the sweats/chills all the time eating or not eating.

I definitely have suffered a traumatic Neuropathy leading to CRPS and I am trying to determine if it is the cause of the sweats/chills. I do take Opiates regularly and for many years for the CRPS pain. I see from one of the replies this can cause sweating. I have long wondered if the Opiates are the cause of the sweats/chills, and they very well may be. But over 10+ years I have been on various levels of Opiates from low to high to low again. I would think that if the sweats/chills were a direct result of the Opiates, then I would have more sweats/chills on high doses and less on low doses (maybe). But what I have is a gradual worsening and intensifying sweats/chills that started a few years after the original injury and then worsened till now 10 years later. Thanks again to all those that replied and have tried to help, and God Bless You All.
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Old 05-04-2010, 03:21 PM #16
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Quote:
Originally Posted by bernclay2 View Post
Hi again everyone. Thanks to all for taking the time to respond to my post. This follow up reply is a real attempt to try to determine the cause of my total body sweats/chills and to try to find a way to treat them. I am having a hard time finding any concrete documentation about total body sweats/chills being a direct CRPS symptom and if so , how to treat it. I have heard both doctors and patients (including some who responded here) tell me causally that total body sweats/chills are a symptom of CRPS. But when I look for documentation I am having trouble finding any. If anyone knows of a link or other documentation that specifically refers to total body sweats/chills as a CRPS symptom, please reply with the info. Thanks.

In response to those who were kind enough to try to help with their replies to my original post, here is a little more detail about my condition. I am a guy so the female sweating issues don’t apply. My medications are stable and have been for a while. I see my doctors regularly, and I have my blood checked at least every 6 months. I am not diabetic and have been checked multiple times. The pre diabetic Fasting Insulin Test may be worth a try just to rule it out. I am not on Methadone, Lidocaine, Cymbalta, Strattera, Fentanyl, SSRI or SNRI medications. I take Aspirin (not every day) as needed but get sweats/chills both on and off the Aspirin. I avoid caffeine. I could have a food intolerance or allergy, but I get the sweats/chills all the time eating or not eating.

I definitely have suffered a traumatic Neuropathy leading to CRPS and I am trying to determine if it is the cause of the sweats/chills. I do take Opiates regularly and for many years for the CRPS pain. I see from one of the replies this can cause sweating. I have long wondered if the Opiates are the cause of the sweats/chills, and they very well may be. But over 10+ years I have been on various levels of Opiates from low to high to low again. I would think that if the sweats/chills were a direct result of the Opiates, then I would have more sweats/chills on high doses and less on low doses (maybe). But what I have is a gradual worsening and intensifying sweats/chills that started a few years after the original injury and then worsened till now 10 years later. Thanks again to all those that replied and have tried to help, and God Bless You All.
Honestly Benclay...

I think that it really is not caused by anyone thing..I think when our systems, immune systems are being taxed and for such a long period of time..our systems react any way it can which includes sweating and/or cold...our bodies are surely out of sorts!!

It is the big picture...

Hugz,Kathy
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Old 05-04-2010, 04:19 PM #17
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The sweating thing is crazy. It just happens. There is no warning and it seems to happen at the most embarrassing times. I try to make sure that I am well hydrated.
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Old 05-05-2010, 04:41 AM #18
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Regarding Opiates, if you begin to go into withdrawl that can cause chills/sweating.

Dr. Hooshmand's website state's "the regulation of body temperature" is one of "three major physiologic roles" of the sympathetic system.

He lists "sensory dysfunction of thermoreceptors" as one of the diagnostic criteria for RSD.

http://www.rsdrx.com/CRPSABSTRACT.htm

Also, this link about thermography is helpful:

http://www.rsdalert.co.uk/treatments/Thermography.htm
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Old 05-07-2010, 10:15 PM #19
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woke up screaming, drenched in sweat. all the meds were the same. realized it was not a nightmare.. it was pain causing the sweating. so sorry to hear this is happening to others. if u are groggy from sleep meds when u wake from this, be careful, i couldn't find my way out of a small bathroom and banged my head all over and fell. keep a robe next to you so you can change fast and avoid the chill. feel better and drink water.
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Old 05-08-2010, 09:51 AM #20
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Just a few links about RSD and sweating :

http://fightingagainstrsd.tripod.com/whatsrsd.html

http://www.davidlnelson.md/RSD.htm

http://www.rsdalert.co.uk/FAQ/ismyexcessingsweating.htm

http://www.rsdhope.org/Showpage.asp?...8&PGCT_ID=2817

http://www.neurologychannel.com/rsd/index.shtml
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