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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-01-2010, 11:14 PM | #1 | ||
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Junior Member
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Hello.
I have CRPS (from crushed nerve in arm) for many years. I am trying to find info, or links, or anyone with helpful advice based on real info relating to total body sweats. I suffer from severe total body sweats with painful chills. I can experience this for hours or days. I am trying to find out if any CRPS info/doctors/websites explain this as a verified CRPS symptom, and if so, what can be done to relieve it. As a side note. I get this total body sweating anytime and regularly. But lately I have noticed that if I am not sweating, and then I eat something, it triggers the sweats that will then continue on (just like when I don't eat and they start on their own). Just to be clear. The sweats happen all the time, not from eating, but lately I have noticed eating triggers it also. Any useful info would be greatly appreciated. I have had CRPS for over 10 years, but lately I sometimes feel like the sweats and chills are harder to handle than the truck loads of pain I have already endured and figured out how to manage. Thanks again. Good luck to all and God Bless You. |
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"Thanks for this!" says: | AintSoBad (05-04-2010) |
05-02-2010, 12:12 AM | #2 | ||
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Hi! I am wondering if you have changed or started any new meds? This can be a "fun" side effect from many medicines. Hope some of the others have better ideas for you, but I have to go and take another shower! Lisa
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05-02-2010, 12:32 AM | #3 | ||
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Junior Member
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CRPS does impact the body's ability to regulate its temperature. The result can be sweating and/or chills. That said, be sure to review your meds with your doctor to rule out any possible culprits, specifically Cymbalta or meds in that category. Cymbalta is a known cause of this. If you have ruled out any med as a cause, you may have joined the ranks of those who add the suffering of sweating buckets on top of our pain. RSD is so much fun! |
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05-02-2010, 02:07 AM | #4 | |||
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Grand Magnate
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The med thing was the first thing that came to mind......in particular, like skooz said, Cymbalta caused me a massive amount of sweating and overheating very easily.....Also back when I was on a high dose of Fentanyl Patch, the spikes in pain relief when changing 3 day old patch to a new patch caused severe chills/clammy/sick feeling (withdrawal-like symptoms).....so by going to a much lower dose of the patch, it kept it more evened out and the spikes are no longer happening.
When our hormones are effected, males OR females (example: opioids are a known culprit to deplete hormones), we can get 'hot flashes' and other strange episodes, not necessarily always 'menopausal' in nature.... physically, once I got my thyroid issues straightened out, it helped me to regulate my normal body heat, amongst other functions Our Thyroid is our body's 'engine throttle'..... I had NO idea how important our thyroid is to our entire adrenal and endocrine system until blood tests revealed hyPOthyroid.......sluggish.....gained weight simply by breathing the air , intolerance to heat/cold extremes........ Regarding the dietary eating trigger......in my case the 'bad carbs' (sweets) triggered pain spikes/gluten intolerance issues..... Maybe if you kept a simple journal of what you ate when you noticed the symptoms kick in.......I noticed on several occasions if I ate a few salty potato chips, It would spark a hot flash type of thing.......iodine reaction....? Just throwing things out there......our bodies are all different of course.... Getting a glycemic/glucose tolerance test may help in either targeting a culprit or at least aid in the 'process of elimination' and ruling out things like diabetic risk factors, etc. Probably need a good blood work up to see what your numbers are..... It takes a frustrating amount of constant detective work...... I hope you can pin down some possible |
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05-02-2010, 07:00 AM | #5 | ||
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Quote:
Hugz, Kathy |
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05-02-2010, 07:36 AM | #6 | |||
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Wisest Elder Ever
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Sweating triggered by eating is called gustatory sweating, and is a symptom of diabetes.
Severe blood sugar ups and downs can cause this. http://www.thefreelibrary.com/Diabet...ng.-a084306315 It is also a sign of neuropathy. (dysautomnia). I think a trip to the doctor, for a complete work up is a good idea.
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05-02-2010, 07:54 AM | #7 | ||
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I've done that..gotz all blood work and complete work up.. remember..I am was in the medical field...My numbers were beauty-est.. right in range... Dr. says..and I quote..Remember, Kath..you do have RSD!! Oh joy! Hugz, K |
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05-02-2010, 08:36 AM | #8 | |||
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Magnate
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I too thought about the meds. Methadone causes me to sweat and if the weather is warm or the house is warm, I get even more uncomfortable from the sweat caused by the meds. Even the Lidocaine patch I wear causes me to sweat. I do believe a lot of meds have this side effect.
Ada |
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05-02-2010, 09:11 AM | #9 | |||
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Wisest Elder Ever
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One test doctors do not perform typically unless asked is:
fasting INSULIN.... this can be elevated in insulin resistance and not show abnormal high sugars on GLUCOSE testing. Elevated, will give blood sugar swings, that provoke sweating. Sweets and carbs, or large meals, are the worst offenders. Fasting insulin elevations are "pre-diabetic". Many doctors don't attend to this at all. If you get a fasting insulin done, do not exercise before the blood is drawn on an overnight fast. This will also elevate the readings. Some of us at PN (myself included) have this test done yearly.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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05-02-2010, 09:57 PM | #10 | ||
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Magnate
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I've looked at all the potential triggers, and there does not seem to be any pattern that I can figure out. The good news is that at some point you'll start to sleep through it, lol. It does seem that the better my pain is in under control, the less frequently it happens???
I've also found taking a shower can reset my body temp some of the time. |
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