Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-08-2010, 02:35 AM #2
fmichael's Avatar
fmichael fmichael is offline
Senior Member
 
Join Date: Sep 2006
Location: California
Posts: 1,239
15 yr Member
fmichael fmichael is offline
Senior Member
fmichael's Avatar
 
Join Date: Sep 2006
Location: California
Posts: 1,239
15 yr Member
Blank

Quote:
Originally Posted by smallfry View Post
please let me know if anyone can not stop moving or contorting their bodies, even with surgical fusion, because of the pain? I can barely type. I can't communicate by computer or read because have to move too much and can not control movements of body well. want to know so much info and to talk to people. can't dial phone sometimes. i will get a tan and spill salt on myself. if u see a pretzel lady, say hi.
Hi.

Have you been on Baclofen? It's regarded by a lot of doctors as the best medication for CNS induced cramping. I'm on 50 mg./day along with up to 20 mg. of Marinol for my worst days, which really makes a difference for spasms. That said I know some people who have gone so far as to get implanted Baclofen pumps, but at least 9 years into this, I'm no where near that.

Mike
fmichael is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The Key is to Never Ever Stop Moving BBS1951 Multiple Sclerosis 1 11-29-2009 09:33 PM
Ugh, my PCP is moving jprinz99 Multiple Sclerosis 6 09-21-2009 03:50 PM
moving Vonn07 Social Chat 21 07-31-2008 09:03 AM
OT? Moving again help? daniella Peripheral Neuropathy 34 03-19-2008 06:34 PM
trying to be zen about moving Mari Bipolar Disorder 5 09-22-2006 07:40 PM


All times are GMT -5. The time now is 07:42 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.