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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Me and my crazy legs!!!

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Old 05-09-2010, 09:46 PM #1
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Default Me and my crazy legs!!!
Today started out well until we started to make the "mom" rounds....with each visit my legs would do something different...I swear they have their own personalities... does anyone else have this when multiple parts are affected?...one leg was icy cold and mottled and the other was hot and formed knots...I am really going to start videoing they because only a handful of people have seen the do this. I LOVE this crazy ride.....NOT!!!!!!
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Old 05-13-2010, 10:38 AM #2
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Cindi...

YESS!!!!! I call my legs "bipolar" because they behave so differently. I hate the temperature changes and especially the mottleling and splotching. I can't handle wearing long pants because of the material brushing across my thigh. People look at me like I'm Shrek when the colors are blazing. I hate it. Also when I am covered in sweat and my teeth are chattering. SUCKS!
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Old 05-13-2010, 11:07 AM #3
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Today started out well until we started to make the "mom" rounds....with each visit my legs would do something different...I swear they have their own personalities... does anyone else have this when multiple parts are affected?...one leg was icy cold and mottled and the other was hot and formed knots...I am really going to start videoing they because only a handful of people have seen the do this. I LOVE this crazy ride.....NOT!!!!!!
Cindi... You are not alone. My legs look oh so pretty, I think at some point everyone with RSD has crazy conditions dealing with the ugly mottled cold or the sun burnt look that your leg is on fire. I also have it happen to my hands and arms. I guess we would be called tri-colored if we were animals.
Your friend Wendy
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Old 05-13-2010, 02:39 PM #4
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Cindi... You are not alone. My legs look oh so pretty, I think at some point everyone with RSD has crazy conditions dealing with the ugly mottled cold or the sun burnt look that your leg is on fire. I also have it happen to my hands and arms. I guess we would be called tri-colored if we were animals.
Your friend Wendy
Wait..Me too!!!! Even right now as I speak..my pain is so high that I feel like I am drenching sweat but to the touch no sweat just shiny lookin legs and I quiever at times, like a parkinson's patient AND if anyone even looks at me..it hurts... plus my mottled legs are not pretty either... I put off showing them in public as long as possible once summer arrives... We are a group aren't we but we are a wonderful family just the same!!

Hugz, Kathy
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Old 05-13-2010, 07:09 PM #5
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At least we are patriotic, Red, White and Blue all at once! Lisa
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Old 05-15-2010, 08:41 AM #6
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At least we are patriotic, Red, White and Blue all at once! Lisa
Lisa, thats a real good one! We could march (well not march) in the fourth of July parade! Wendy!
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Old 05-15-2010, 12:47 PM #7
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How about a collective GIMP!?!
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Old 05-16-2010, 01:08 AM #8
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I just love you all!!! My family doctor uses the MS board on here and I told him that you all have helped me so much....he understands what I go through so much because of having MS that he has been the only dr who "gets" it!
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Old 05-16-2010, 01:24 AM #9
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Wait...

I shivvvver too! What's that about? Is it meds? And the "looking at you"...I feel like I am "exposed" when I go out in public. Stores, Grocery shopping, etc. I can't handle being around people. I am afraid that they will run into me or hurt me. Even driving. I know that I' crazy for feeling this.,, but...

Kim
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Old 05-16-2010, 06:39 AM #10
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Wait...

I shivvvver too! What's that about? Is it meds? And the "looking at you"...I feel like I am "exposed" when I go out in public. Stores, Grocery shopping, etc. I can't handle being around people. I am afraid that they will run into me or hurt me. Even driving. I know that I' crazy for feeling this.,, but...

Kim
Kim~

You's not crazy..girl you have RSD... Oh I do the "dance" too...go figure I couldn't shake until RSD came along..It's not medicine I ma certain... as you know, I don't take medicine for my RSD...lets take this one to broadway!!

Hugz, Kathy
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