Welcome to the family.

Have you had blocks for the RSD? I have never had any headaches from it and I have always said that I feel bad for people who suffer from Migraines. It has to be really rough to have a headache all of the time.

Blocks to me are one of the most important things to help get RSD under control if it can be done in a person.

I'm not much help on meds because I have tried them all and can't take them so I don't know how much help they are to people. I am on Methadone for pain since it was the only one we found that I could tolerate and it does help with the pain. It is getting to be the number one pain med.

Also I use lidocaine patches and those might work in certain areas of your body which you can feel the pain the worst.

It's good that you can do exercise that does keep a person moving better.
I try to do just what exercises my body will let me which aren't many but I don't give up.

I'm glad you found the group, maybe they will come up with the ideals you need to help get some comfort.

Ada

LMJ - Thanks for your imput.
I have heard that Tai Chi is very good for RSD,TOS and MS.
I am going to ask my PM doc about it next time I see him.
He gave me the ixnay on yoga due to my limited range of motion and general stiffness.
I so long for a range of motion. I often wonder what that would be like
I too suffer from migraines however I am still able to do a small amout of cardiovascular activity.

In his hands - I am glad you are getting a range of motion in your shoulders
As mine have been so bad for so long they don't seem to want to go anywhere.

Ada -I may be new to this forum but not new to RSD.
I have had more blocks than I can count and been down every route and tried every therapy etc that I can get my hands on .I am stubborn and determined to a fault.
I am still afflicted with this and the TOS double whammy amongst a few other things.
Oh well beats the alternative

Jas

welcome jasmine.... the people here are the best..glad you found them...they have all help me get thru so many nights filled with pain and depression..we all understand what you are feeling..and i am wishing one day that even some of our pain will fade away...stay strong..linda

THEY don't want to go anywhere- they hurt awful, but my physical therapist makes them move, and so I'm able to get the motion that way.

Have you tried physical therapy? I have seen some benefit from it... it is slow going for sure, but I am having better days over-all with it.

A lot of what I do at PT is desensitization (a major problem with RSD!), then movement and strengthening excercizes. Some I try and do at home, and incorporate them into daily life. That is hard, but I know the effort has got to pay off!!

Sending you ((hugs))... Have a great evening.

Ditto this!!

The lidocaine patches do help with the pain!

Keep on movin'!!

Hello,
Thank you for suggesting physical therapy. I am doing my Tai Chi and also when I went to PT my doctor wanted me to do strengthening exercises for my arms and legs. I use a power band for my arms that is working out good. I can definately tell the difference when I am using the power band. My shoulders look better not so skinny and starting to build up muscle. If I don't exercise my arms and my legs get very skinny no muscle around them. If I keep exercising that will help with my muscles from being so skinny. The tai chi is giving me muscles in my legs too. Also, I do a few exercises with my legs. Thank you for your suggestions I always appreciate it. Take Care hope everyone is having a pain free day.

LMJunior

Some of the movements of Ti Chi or Yoga {arms help up or out for any length of time} probably won't be to good for those with TOS - but you could adapt the moves to what you can do and go from there.

But I totally agree that slow, smooth movements and motions will give a benefit in overall health. what ever amount it is that you can do.

A lady on the PBS station here does chair exercises and chair yoga.

Hello,
I have two shoulders that sublux so I can't go over head,but like you said you just do it where you are comfortable. I told my Tai Chi instructor and she said its for your health so go however far you are comfortable. I am also careful with my legs because I have loose legiments. Even though I have these limitations I can do the tai chi decent. I practice it now in my living room so if I don't do everything perfect it doesn't matter. I hope you found these comments helpful. Take Care hope you are having a pain free day.

Lmjunior

In His Hands - PT has always done me more harm than good.
They always flare me something awful

I do what stretching I can at home and like LM Juniour said I work within my limitations without hurting myself, while at the same time doing something -if that makes any sense .

Thanks for all the sugestions and care

Jasmine

Welcome Jasmine and Lmjunior to NeuroTalk!!!! Its wonderful to meet the both of you, minus the RSD circumstances of course!! This board is amazing!! I found it back in Oct, 06... Sure glad I did! I knew NOTHING about RSD when I was diagnosed with it in Aug, 06.. EVERYONE on this board is down-to-earth, sweet, patient, understanding, respectful, caring individuals!!! I could still go on and on how terrfic everyone is, but Id be writing line after line! lol Hope we can all help and guide you through any questions youhave for us! Best of luck!!

Pain free hugs to ALL!!!!!

Always,
-Heidi