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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-16-2010, 08:47 PM | #11 | ||
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I was thinking of getting one myself only thing is i can't have anything touching my arms or wrist. I wonder if they make one as a necklace?
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05-16-2010, 08:56 PM | #12 | ||
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Yes they do, check smile's link. Lisa
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05-17-2010, 12:38 PM | #13 | ||
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I have worn a medical alert braclet for over three years since getting RSD in my left arm. A neurosurgeon suggested I get it. It says - needle sticks, right arm only. Can I even tell you how many times a tech has started to prepare my arm for a blood draw without ever even looking at what the braclet says. I swear - it shocks me. I just don't want them to ever put a needle or a blood pressure cuff on or in that arm. The world can be a scary place when you have RSD.
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05-18-2010, 03:25 PM | #14 | ||
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YAY!!!!
I just got mine and I LOVE it! Thanks for the "link"! HaHa! Kim
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05-18-2010, 04:43 PM | #15 | ||
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Quote:
http://www.americanmedical-id.com/ma...scrollerpage=1 there are gold colored, black and other options toward the bottom of this page. http://e-commerceunlimited.ecrater.c...php?cid=691250 good luck!
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wishing you peace and relief! Sukadog crps2 right arm/hand since 8-28-08 (direct nerve injury) |
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06-06-2010, 08:25 AM | #16 | ||
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I wear a medical alert bracelet, because I'm on high doses of narcotic pain medication. It takes 2 Duragesic patches to get to my current dose and I always worry that if a problem came up with those, the paramedics might not notice both of them.
*edit* Mine is just about an inch wide, like a cuff, and is made from little tiny beads that are woven together. It's got a blue and white checkerboard background with the word "Hope." It sounds kind of mushy, but it's an alert bracelet for everyone else, but for me, it's a tangible reminder never to lose hope, even when I find myself getting bogged down because of my pain. It's completely unique and I've never seen anything like it anywhere else. Last edited by Chemar; 06-06-2010 at 08:48 AM. Reason: NT guidelines on links |
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06-06-2010, 04:18 PM | #17 | ||
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I wear a medical/alert necklace as my wrists cant handle bracelets. Mine states I have full body RSD, that I have an SCS and a medical port and also lists all my allergies as I have several allergies to different pain meds that are normally given.
It actually really helps with the ER cause I dont have to sit and explain everything when all they have to do is read my tag. Niki |
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06-06-2010, 07:51 PM | #18 | |||
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In the book Positive Options for RSD the author suggests the Medical Alert company (medicalalert.org). Like aussiemom said, they offer a lot of services other than the 'jewelry'. They notify your family after they've given emergency responders your info, you can update your info online so they have the latest info, plus you get a wallet card (!). Besides the regular bracelet, dog tag, and necklace they also offer a shoe tag.
Regarding the wallet card... I was taking a medicine where the instructions said to carry/wear something that says you take this medicine. I spoke with a local firefighter about this and they said they never go through anyone's wallet so wear the info. Could be just my area. |
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"Thanks for this!" says: | keep smilin (06-06-2010) |
06-07-2010, 07:14 AM | #19 | ||
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Now why haven't I in the world gotten one? Maybe it's the clicking on the piano or probably just because my stupid medication kicked in and I took dosages instead of one?
With people like us who have additional hardware such as pumps, media-ports, taking huge dosages of blood thinners plus that clot busters inside that main vein leading into the lungs is more than enough good reasons to get one so I guess I'd better add that to my list. I'm so glad you guys have your brains on straight because I'm clearly out of alignment. Bob. Quote:
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06-07-2010, 04:06 PM | #20 | ||
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I dont have a medical alert bracelet. But, I do have a calendar notebook that I keep in my purse. I added some little pockets that I put my medical info in the front of the book. My friend that is a nurse helped me organize it. Page 1 says *ALERT* RIGHT SIDE OF BODY is extremely sensitive to touch!! DO NOT USE FOR: BP's, pulse ox, axillary temps, sticks (IV's or blood draws, etc.) Page 2 has all my diagnosis & blood type. Page 3 has my demographic info & medication list. Page 4 has my doctors contact info & emergency contacts. The book has lots of space for me to write down what time I take each med. It's small enough to fit in my purse so if I take a medd while not home I can write it down. I told my close friends & family that when I have to go to the ER or a doc appt. to make sure I have the book. I had a book like this last year that I got slack about & quit using. But, when I used to go to the ER....nurses & docs were very appreciative that I had it I think I would receive better care.
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"Thanks for this!" says: | Lisa in Ohio (06-07-2010), Mycah (06-07-2010) |
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