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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Does anyone NOT take meds and somehow tolerate the pain....and can this cause spread (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/122082-meds-somehow-tolerate-pain-cause-spread.html)

Momlovetobake 05-24-2010 07:03 PM

Thanks so much Kathy caring means alot..

pooh_ac 05-24-2010 09:03 PM

Quote:

Originally Posted by keep smilin (Post 654676)
H4thb....

ME!!!!!!!!!!!!! I take NOTHING!!!!! Not by my choice as my pain is head popping pain..constantly..but my tummy will NOT allow me to take anything..dear god it is hard to live this way that is why I have had other ways to keep my mind and heart busy... Mkaing the negatives of RSD into positives..live by that and i have learned to not think about my future as I don't control that anyway.... As far as spread.. I don't believe it matters only..mean pain without meds..can wear you out quicker..but as far as spread..I believe RSD will do what it wants no matter what!!

Love,. Kathy:grouphug:

KATHY!:eek:
Ask your doc about topical ketamine, fentanyl or some compounded forms of medications that are applied as a cream one to more times a day. There is no reason to suffer such pain as we have on a daily basis without some sort of relief if even for a short period of time:hug:

daniella 05-25-2010 05:59 AM

First I give so much credit to everyone here for battling but people who have families and kids the strength you have is amazing. I can't even imagine as taking care of myself is hard.
Anyhow on to the ? I have had times of being on meds and no meds. For most of my rsd accept the first few months I have not been on narcotics except maybe once a month a pill. I don't see the connection of my spread though between the times I was off meds completly. I am not sure why the spread or flare ups. For ex I was making progress very slowly but progress and then out of no where I had a flare up that never settled down. Same meds and same routine. I am super sensitive so a knock on my rsd leg can send a flare up that will last. I do feel the right amount of activity meaning not too much and not little is very important. I also do feel that I compensate for the rsd leg that is the worse and this creates problems in itself.
Momlovetobake I have been to a few pain docs have been suggested a range of different treatments. Is there a possibility of seeing another one for another opinion? I see a neuro too cause of my PN and though he did some with meds other treatments the 2 neuros I have did not do so well with. I am not saying yours is like this just my experience.

keep smilin 05-25-2010 07:55 AM

Quote:

Originally Posted by pooh_ac (Post 657717)
KATHY!:eek:
Ask your doc about topical ketamine, fentanyl or some compounded forms of medications that are applied as a cream one to more times a day. There is no reason to suffer such pain as we have on a daily basis without some sort of relief if even for a short period of time:hug:

Pooh... (I just love that name!)... I have been on the fentanyl patches before..Slapped that baby on only to find later..I couldn't pull it off...OUCH... As far as cremes..I have made a mental note about asking for the Ketamine creme at my next appt..but not to sound crazy but touching my skin to apply it has my attention..but I will do whatever it takes....

Have a great day...Hugz, Kathy:grouphug:


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