Thanks so much Kathy caring means alot..

KATHY!
Ask your doc about topical ketamine, fentanyl or some compounded forms of medications that are applied as a cream one to more times a day. There is no reason to suffer such pain as we have on a daily basis without some sort of relief if even for a short period of time

First I give so much credit to everyone here for battling but people who have families and kids the strength you have is amazing. I can't even imagine as taking care of myself is hard.
Anyhow on to the ? I have had times of being on meds and no meds. For most of my rsd accept the first few months I have not been on narcotics except maybe once a month a pill. I don't see the connection of my spread though between the times I was off meds completly. I am not sure why the spread or flare ups. For ex I was making progress very slowly but progress and then out of no where I had a flare up that never settled down. Same meds and same routine. I am super sensitive so a knock on my rsd leg can send a flare up that will last. I do feel the right amount of activity meaning not too much and not little is very important. I also do feel that I compensate for the rsd leg that is the worse and this creates problems in itself.
Momlovetobake I have been to a few pain docs have been suggested a range of different treatments. Is there a possibility of seeing another one for another opinion? I see a neuro too cause of my PN and though he did some with meds other treatments the 2 neuros I have did not do so well with. I am not saying yours is like this just my experience.

Pooh... (I just love that name!)... I have been on the fentanyl patches before..Slapped that baby on only to find later..I couldn't pull it off...OUCH... As far as cremes..I have made a mental note about asking for the Ketamine creme at my next appt..but not to sound crazy but touching my skin to apply it has my attention..but I will do whatever it takes....

Have a great day...Hugz, Kathy