Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-30-2007, 10:14 PM #1
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Crazy moonstar update..

hi...been off for a few days..pain levels way up ..energy levels way down..
went back to ent yesterday and of course on the way there some lady ran right into the back of my car...add it to the list...not too much damage to either car..but my body did not need anymore jolts ..lower back hurts some but not much more than it did before she hit me..her insurance company can not find her in their files so it will take some time to be able to have car fixed.i have not worked since dec..so with no $$ coming in..i will have to wait and pray they locate her and she does the right thing.....

anyway i finally got my appt for the sleep clinic.. terry goes to camp on feb 15..and i will get the first test done..i told them my problem is mostly during the day..but the overnight has to be done then they can do the day test..hope i can get that one scheduled for another time when terry is away..nothing is ever easy for us..is it? the dr doesn't want me to go back to work till we get some answers about what is going on...and he admits that he like the rest of the drs have no answers yet...

trying very hard to stay on the bridge..seems to get harder each day though..i am going to go to the rsd group meeting on feb 2..i have signs all over the house to remind me...can't miss this one... if i fall asleep steve has permission to dump water on me to get me up and out...a bit nervous about it...i am kinda shy around people.. good listener for others...need to learn how to let others help me...this group has helped me alot to open up and let some know how i am really feeling... without hiding it ..and for that i am so grateful.. to you all...linda
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Old 01-31-2007, 11:20 AM #2
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Oh, Linda...this all sounds so positive! Exept, of course, for the fender bender! But you have your appointment and you're going to the meeting and you're getting the idea you have to look after yourself a bit more. AWESOME SWEETIE!!!!

You sound much better today, and for that, I'm thankful

Hope the rest of your week is just as great
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 01-31-2007, 11:30 AM #3
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So sorry about the woman clouting you, last thing you need! Hope she does the decent thing...

Thanks for the update, Linda, yes, this all sounds good. What a great idea this RSD group meeting is, that must be really interesting... is this a common thing in the US? Or are you just lucky to have one in your area? I hope it all goes well, yes, good for the confidence too. Take care,
all the best
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Old 01-31-2007, 11:59 AM #4
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It sounds like you have some good plans - and at least your dr is working to track things down for you.
Just remember that whiplash or other pain can show up at a later date too - so hopefully the ins can find the person. just in case
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