NeuroTalk Support Groups - Horrible flare...dont know what else to do....

Quote:

Originally Posted by firegirl (Post 658853)

Sorry if my replies are short...i'm still in a bad flare, but wanted to answer your questions.

gatorsmomma, lisa in ohio, dreambeliever128, hope4thebest- Thanks for the kind words!!!!

keep smilin- thanks! i also try to enjoy the little things in life...we have to!!!

olecyn- thanks! I try to move as much as I can, no matter how bad it hurts.

bobinjeffmo- The pump that i had for a few months had something that i cant think of the name of right now in it...i know it had numbing properties & was not morphine.......i also get embarrased when i'm out in public between the way i look in or out of the chair...i hate the stares

loretta-thanks! i've had rsd for about 3 and half years...the closest support group in about 3 hours away.....with hbot i only dove 3 times...it killed my ears & made my pain much worse......i have also tried meditation, visualization, biofeedback, music, & desensitization...........sorry to hear about your parents!!!!! hat is aweful!!..........have tried pain therapy & talking to a therapist 2x a week.......also been inpatient for the depression part of bioplar 6 differrent times..........i also pass out from the pain........as far as heart problems go i get very irregular heart beats that make mizzy & pass out sometimes............i just moved too...i have moved 4 times in just over 6 months after breaking up with my boyfriend of 12 years & moving in with my parents who are always moving......i wake up alot at night in pain....thanks again for all the advice

Thanks again everyone!!! You are all so sweet!!!!!!!!

Hi Firegirl and 'ALL', your post has caused us all to pause and think deeply in our heart how we can encourage you and others. Just by posting in your tears and pain helps, not only you, but all of us. Each reply helps, not only you, but the rest of us.
We are in this together, thank goodness, we are not alone. I know a lot of us have a tendency to withdraw and be alone, but we immediately feel better the day we move out of the house, even to go to store, wheter walking or wheelchair.
Please know how much we care for you and each other. Don't give up- and we won't give up on you either, we will be here for you. Don't ever hesitate to write and ask for help.
Have you ever journaled? I learned that back in the 80's and even read them to my deceased parents. Journaling brings up pain, but working thru pain thru writing will bring up feelings we didn't even know we had. Getting to a place of peace, like someone mentioned is a process and inner joy CAN be HAD thru this process. Somedays I just go thru things I'm grateful for. Sometimes just putting them on the mirrow can be a good reminder.
Do you have a pet? We have a cat, Sabrina, She loves to sleep with me and her soft fur brings such comfort. Our daughter has a 7-8 lb min-pin.She just loves it at grandma and grandpa house. They take work, but for some of us bring such love and comfort. Even working a 'pet' puzzle can bring a smile to our face.
This is NOT easy, it's dreadful, but distraction can help us mentally. Music is a big one for me. The gold 'ol oldies' 50's music. Please keep in touch and let us know how you are doing. One of your new friends, loretta