NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Do You lay in bed at night trying (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/12303-lay-bed-night-trying.html)

misreable 02-05-2007 02:56 PM

Hi Ada
Thanks for answering me the information will be very usefull--know one has been in touch or responding to me--maybe I talk to much go on to long--who knows.
Sooooooooooooo cold has been making everything worse for me
Take Care
Susan

InHisHands 02-05-2007 07:09 PM

Hey, Susan....
 
Quote:

Originally Posted by misreable (Post 67391)
Hi Ada
Thanks for answering me the information will be very usefull--know one has been in touch or responding to me--maybe I talk to much go on to long--who knows.
Sooooooooooooo cold has been making everything worse for me
Take Care
Susan


BTW Susan, when I had posted about PT/ RSD I meant to address it to Laurie and YOU, not Laurie and Jasmine! :o Oops... So, I was trying to answer YOUR questions about RSD/ PT and desensitization/ therapists. ;)

I answer everything I can... I think everyone else does too. Maybe some posts got overlooked? I am sure no one is trying to ignore your posts. Everyone is so helpful here. I really appreciate everyone. People on this board have helped me out a lot since I joined in December. I'll be on the lookout for more of your posts... who knows, maybe I can help you out! :)

I hope you have a nice evening! :hug:

InHisHands 02-05-2007 10:24 PM

Quote:

Originally Posted by misreable (Post 65956)
Forgot to ask you do you have any sensitivity if so what do you take? or if you
know any one who is suffering !!!!!!!!!!!!!!!!!please let me know

I think everyone here is suffering in some way with RSD.

I *think* that the only thing that can be done for the sensitivity is desensitization. Some pain meds. may help.

Where is your RSD located?

Maybe you could start a home desensitization program, if you are unable to find a PT place for that. That might improve your sensitivity to a point where you can have things constantly touching you (ie- if the RSD is in your foot, you are able to wear a sock/ shoe). Somehow we have to try and have things touch the affected extremity. I know how hard that is... I have RSD in both my legs/ feet and hands/ arms/ shoulders. If I decided I couldn't have ANYTHING touch me in those areas I'd be wearing next to nothing. :D LOL, see what I mean?

I don't mean to sound harsh at all, but I think you can find something, somehow. Keep trying!:hug: HeatherAnne mentioned things she did for at home for desensitization, in my muscle spasms thread:
http://neurotalk.psychcentral.com/showthread.php?t=9621

I've heard of people pouring RICE on their foot that was affected. :eek:

Hugs,
IHH


All times are GMT -5. The time now is 04:00 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.