Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-02-2010, 05:15 PM #11
firegirl firegirl is offline
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Join Date: Nov 2008
Posts: 125
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firegirl firegirl is offline
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Join Date: Nov 2008
Posts: 125
15 yr Member
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Thanks for the feedback everyone.....sorry if my replies are short....i'm just not up for typing much right now

RUReady- thanks for the kind words....nice to know a fellow firefighter knows how i feel (though im sorry u have rsd)

loretta- i've had rsd since April '07.......i couldnt tolerate HBOT & cant find a doctor where i live that will try ketamine........my doctor is not very knowledgable about rsd but he consults w/ other docs.........i sleep at night but wake up in pain almost every hour.........i dont have RA........i have a really good therapist!

SandyRI- i've tried the big teaching hospital where i live with no luck & ketamine is not available

Wilbyfree- i agree that making sure to move around when in wheelchair is very important

hope4thebest- i only have 2 docs writing my meds (psych doctor & primary doc who writes everything else)

finz- a friend of mine that is a nurse said same thing u did about the Oxy dosages......the Dilaudid was given to me at the ER last time I went for when its REALLY bad (probably not gonna ask my doc for a refill).........i take the Marinol in 4 dosages throughout the day.......i just started back on Marinol about a week ago( had 2 quit taking it 4 awhile due to insurance reasons)

AintSoBad- i dont take more meds than i absolutely have to (my pain is still a 7 or 8 at best with all the meds).......i know that no amount of meds will ever make my pain disappear

mrsD- that is scary about Cymbalta, but I've tried so many & this is the best psych med mixture i've had in a long time...........i take the Seroquel for bipolar disorder (every time i went inpatient they kept upping my dosage so it would work better)........i agree i am taking quite the cocktail of meds
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