Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-31-2007, 12:39 PM #1
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Default How's your weather?

We are getting snow again today. 1 to 4 inches. I have a Drs. appt. this evening, most likely won't make it. Also have one Friday but they are calling for an even bigger snow storm Friday.

This will be our 8th weekend in a roll of snow not counting what we are getting through the weeks.

I use to think I would love to have a Dr. or Lawyer in the family but I'm happy now with a plumber. Mine was just out here. I had a busted outside water pipe and didn't notice it until yesterday. Susan and I had been trying to figure out why my water bill was higher with just me here, now I know. LOL

This is the second time he's been out here. We have lived here for over 8 years and the is the first year ever that we have had busted pipes.

I was wondering how everyone was faring in this weather. My heat bill this month was 222. and that's with keeping my heat at 60 each night. Like Rosie, I don't need the heat at night my body burns hot enough that it doesn't need anymore heat thanks to all of the diseases.

At least we won't be in a drought this year. We've delt with that for the past 5 years.

I HATE THIS WEATHER.

Ada
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Old 01-31-2007, 01:20 PM #2
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Hi Ada.. It is so cold here and we are suppose to get snow and ice this afternoon. I don't mind the snow but hate the ice.

So how have you been? I am so sorry I haven't called the past few weeks but have been so busy with my new job and then I have started my own business as well so I have no time for me, or so it seems. LOL Also, I am suppose to be moving but with no time and bad weather that's not going so well..

I will try to give you a call sometime this weekend an we can catch up..

Love ya,
Janet
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Old 01-31-2007, 01:47 PM #3
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Default Hi Janet,

I was going to email you yesterday but I have the wrong email address.

We have had the ice and snow also. Never did have weather like we are having now. I am cancelling my Drs. appt. here for today and Friday. I can already tell by this evening it's going to me 10 times worse then what it is now.

I have been watching the weather some and it looks like most states are getting hit hard with ice storms and snow storms. Even Florida was in the 30's yesterday. My friend is in Arizona and they got some snow last week. That almost never happens in the area she's in.

It just seems never ending. I can just hear Bill if he were here today. He would have been driving me nuts wanting to go somewhere. Actually he would have went in it. He wouldn't have cared how bad it was.

We still have at least 3 more months of winter and at this rate, I'll never get anywhere in the next 3 months unless someone takes me.

Ada
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Old 01-31-2007, 04:41 PM #4
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it's ugly here too ada.....we started out with such a mild winter, but january has been nasty.....we've had several one-to-two-inch snows which melt just enough to make ice.....and this sunday it's supposed to go down to 2 degrees (from a high of 16!).....i'm with u....i hate it.

think spring.....THINK HARDER!
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Old 01-31-2007, 05:29 PM #5
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Cold and getting colder I think news man said it will last into the middle of next month BRRRRR
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Old 01-31-2007, 07:32 PM #6
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Default we are freezing here...............

hi ada, we are freezing here.............not much snow to speak of tho.........i bet in april we will be bombarded with the snow.!!!!! it is something like 9 degrees here today.............i hate going out in this, but frank has daily therapy and i have to drive him..............
I am with ya coach.......BRING ON THE SUMMER........................I HATE WINTER IN MICHIGAN..........BRRRRRRRRRRRRRRR
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Old 02-01-2007, 02:54 AM #7
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Default Hi Girls,

I figured I wasn't alone in this mess.

I did go to see my Dr. this evening. It had been snowing off and on all day but it wasn't piling on and the sun came out to melt it some. I thought well i'll go ahead and go since it's not bad.

When I left the Drs. office it was snowing and already had over an inch and was like a blizzard coming home. I drove about 20 miles an hour all the way, it was worse out in my area. I couldn't see the lines on the highway. When cars came toward me I knew I was in the wrong lane. I thought about picking up my boys but decided I didn't want to take a chance with them.

I can't believe this crap. I got all of my spickets dripping. It's suppose to get to 7 tonight. Friday night it's suppose to get to around 5 and lots of snow. I am having trouble even getting out to pay bills. I have to have Susan to pay them for me by phone. They are paying the ones I can't pay. I'm very blessed with those two. Travis called me Sunday night to tell me to hand Susan any bills I can't pay and he'll pay them. He wants to get my house paid off and get me moved into a smaller place and have this for a rental for extra money. He's making the plans and I'm find with them. I have 10 more payments on my home and it's mine. It's a long 10 months though because I lost Bill's income and only have mine to live on. I was very worried about it and cried a lot until Travis called me.

Losing Bill gets harder instead of easier. The man only had a 6th grade education but he was one of the smartest people I ever knew. He kept up with everything going on in the world and knew how to do everything. If something could be fixed he could do it.

He was disabled for years but he did so much for the elderly and disabled. He would take them to Drs., he would take groceries to them and he would haul people anywhere they needed to go most always for no pay.

All of Susan's friends called on him for everything they couldn't do from installing a dishwasher to fixing pipes and cars. Her friends thought of him as their Dad. He made them laugh and would pull jokes on them and they loved having him around.

He spoiled me rotten. We were together 34+ years and everyone that knew us said we were made for each other. We had our ups and downs like everyone do. I mostly got mad at him. He would laugh when I wouldn't say I loved him and say that's ok, I know you do. I use to say he was smug.

My Mom and Dad worshiped him and thought of him as their own and my family loved him. They called and talked to both of us all of the time from Ky. I just didn't have the same luck with his family but his kids love me.

We had a rough time because he was disabled for so many years but we still had about anything we needed. We did antiquing on the side to keep going and he loved redoing furniture and being around people.

I can honestly say he was one of the best people I have ever known. I am pregadist but I also know this is all true about him.

He was good looking, smart, funny, sometimes too funny, I couldn't have a serious conversation with him. I know that I would have to look a long long time to find someone to even come close to how he was. I always say he was from the old school.

I knew at the funeral how much he was loved by the people there and everyone that talks about him when I see them.

I just wanted to write this to let you know kind of what my life was with him. I was proud of him all of the time. Mad at times but still proud.

I was lucky to have these years with him. I told my Dr. today who is one of my best friends that what bothered me the most is that I couldn't get well in time for us to get back to somewhat of a normal life together. I tried harder the last year or so because I knew what shape he was in and I knew when the time was getting near but I just couldn't get to the point where we could enjoy more things together with him.

I hope this doesn't bore you guys but I just wanted to share this with you.

Thanks for all of the support you guys have given me. Coming here to talk to you guys helps keep me going.
Ada
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Old 02-01-2007, 03:25 AM #8
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Not in the least boring, Ada, thank you.

You're doing well, so well. xx
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Old 02-01-2007, 02:16 PM #9
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ada,
that was great thank you for sharing that with us it warmed my heart on this cold snowy day.

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Old 02-02-2007, 10:03 AM #10
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Ada, it took me three tries to read that...I teared up so much, just reading it. The love you two had for each other - and actually STILL have - just shines thru that post. Going back, reading the posts you have written since his passing that's all I hear is that love.

I can only hope that my SO will speak as highly of me as you do Bill when I leave this earth. I'm sure he will...he does NOW. But I have to say that I, too, feel you are one of the luckiest women I know, to have loved and been loved the way you were and still are. Many blessings were given to you in your lifetime, and are still to come. Not only from Bill, from from your friends and family. I envy you. Cherish those memories of Bill...and cherish the loved ones you have surrounding you now, for they are not with you only because of Bill's passing...but because of your kindness and the love you have given them thru the years.

Now, I'm crying again. When your funds get better, you owe me a tube of mascara!!!

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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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