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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-08-2010, 06:48 PM | #1 | |||
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Grand Magnate
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We got our Forum ! !
They even put it at the top as a 'stickie' ! HOW COOL is that! Another way to access it is on the Forum's Main Menu, it is a subforum under "Medications". Thank you everyone for your support to get this going! They started it off with a 'poll'. What a great idea! Get on over there and start postin !! |
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"Thanks for this!" says: | ALASKA MIKE (02-14-2010), Azaila (02-10-2010), Chemar (02-09-2010), Kakimbo (02-11-2010), RNcrps2 (02-08-2010), screwballpookie (02-09-2010) |
02-09-2010, 11:36 AM | #3 | |||
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Administrator
Community Support Team
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here is the direct link to the SCS and Pain Pumps forum
http://neurotalk.psychcentral.com/forum118.html
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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02-10-2010, 07:09 PM | #4 | |||
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Junior Member
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It's the best!
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"Thanks for this!" says: | Rrae (02-10-2010) |
02-10-2010, 08:14 PM | #5 | ||
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Member
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Rrae-feel free to contact me about your upcoming SCS.Carol
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"Thanks for this!" says: | Rrae (02-10-2010) |
06-04-2010, 11:06 AM | #6 | ||
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Junior Member
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[QUOTE=Rrae;619481]We got our Forum ! !
Rae: Are my posts getting out there? I have my SCS (Feb.2008) repositioned now to the left hand side of my body almost my stomach. When the Dr. opened me up he found some infection and the leads had almost pulled apart from the SCS. I knew something was wrong when it was hurting so badly for three months. I have had no problems before that and get relief for my legs. Once the Medtronics rep. reprogrammed it-I was ready to go. I am not the "Energizer Bunny" by any means but it works better. Now I just have to recover from the stupid staples (a total of 20). I go back next Thursday to have them removed. YEA! Please send advice on posting and using the website since I am having such a problem. I feel stupid and I was so excited about making friends who had similarities. Thank you. DebDog |
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06-04-2010, 11:20 AM | #7 | |||
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Grand Magnate
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Hey there my friend!!
Did you get my PM (private message?) Your messages are coming thru......there may be a delay B4 you see them on the board until you've made about 20 posts (i think), as the new members posts are limited/screened until pre-approved by the admin. This is why this forum is so great (and safe!) because no 'spam' gets thru! Here is the direct link to click on to get to the SCS forum. Click here: http://neurotalk.psychcentral.com/fo...ysprune=&f=118 Check your user page, I'll send a 'visitor message' to you. I've received your PM's and responded, but maybe they haven't come thru yet. Hang in there! It takes a bit to get used to, but you're doin just fine!! Rae |
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06-05-2010, 08:44 AM | #8 | ||
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Member
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We need to get past "what people think pumps are all about" and into the "this is the real world, and this is what you need to know" area. Thanks to this forum, hopefully we'll be able to help people and their fears. The more information we can learn, the better off we are - and more importantly others!
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