NeuroTalk Support Groups - I am having a Lidocaine Infusion on Tuesday

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - I am having a Lidocaine Infusion on Tuesday (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/124026-am-lidocaine-infusion-tuesday.html)

Quote:

Originally Posted by malawigirl08 (Post 662212)

Thanks Sandy
Healthcare insurances must be a nightmare - it is an added pressure when you are not feeling in top condition. In the UK we dont have that problem but the waiting lists are horrendous and they are looking set to get worse with the spending cuts - lots of us are looking at private healthcare but as I have already been diagnosed I cant go private.
Thanks again for putting me at ease
Arlene

Dear Malawigirl08/Arlene: I've been a chronic pain sufferer for about a decade, and it's taken away most things worthwhile in life (including studies, career, ultimately my marriage). I'm originally from Canada, but based in Scotland (as I presume you are), and years with the pain unit at Edinburgh's Western General Hospital has done me no favours. I moved back to Canada for 1 1/2 years to look for 2nd opinions and found an effective "cure" for my condition, when a doctor there started combination lidocaine & ketamine infusions (45 minutes, once per month). I have been back in Scotland for OVER TWO YEARS, and I am STILL fighting to be allowed to continue this, the only truly successful treatment I've had (instead of problematic opiates). If you know of doctors in Scotland who are familiar and comfortable with this sort of therapy, would you PLEASE contact me? Perhaps I could make a request to be seen by them, instead of the doctors I've been dealing with, who have dug in their heels against such treatment, with pretty flimsy justification. I hope you still check this site (your post is now years old), and that this finds you in good health and humour! - Deryck

I know this is an old thread but just curious, for those getting subcu lidocaine infusions, where did they put it in?

YAY YAY

Hope it gives you good relief.
Take it easy and enjoy some moments of relief......anything is a blessing right?

:p

Quote:

Originally Posted by malawigirl08 (Post 662770)

Thanks for this evaryone, my experience so far has been just the same as yours MsL, I ended up having the infusion for around 6hrs and my BP went up and then dipped - I felt dizzy and sleepy for the middle part and then rallied and was pain free at the end yipee!!!!
I too had to go to a post op ward but the whole experience was brilliant, i have decided to take it easy for the next few days - I havent been sleeping because of the pain so am exhausted and just need a rest from work(although I will probably spend most of the day doing emails tomorrow)

Thanks for everything
Arlene

Thanks for sharing ,I'm rsd patient with scs for a while,and still never heard of so many treatments outer ,good to know and thanks for you sharing with the experience you had .
I only know lidocaine injections,patches and suspension for compounding magic wash other than that this is new but defiantly willing to learn and talk about that with my new doctors ,thanks you ,gentle hugs from Jesika .:grouphug:

Deryck
I am so sorry I missed your post as I haven't stopped by here in a while. I am treated by Lanarkshire Pain Team and they are wonderful. I have never heard of the ketamine and lidocaine mix as we are all treated with solely lidocaine. Funding in Scotland is a problem due to funding but hopefully that will be resolved soon.
Good luck