Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-06-2010, 09:11 AM #1
hannah1234 hannah1234 is offline
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Default help me please :(in HORRIBLE pain 2 weeks after wisdom teeth out

I had my left side wisdom teeth out two and a half weeks ago and am in EXCRUCIATING pain....
My dr added neurontin, tramadol, baclofen, celebrex, 6mcg of diladid every 3 hours, fetanyl patch-- and i still cant handle the pain. I had a ketamine infusion last thursday because thats what i get for my rsd pain and we thought maybe it would help with this and it didnnt even touch the pain... I have been twitching really bad and shaking from the pain. My dr is really concerned and has helped alot but I am wondering if anyone else has had this kind of horror with their teeth. My whole bottom and upper jaw all the way to the front is raw and i cant touch itl.... i brush it and just ball my eyes out because I know if I dont brush them I could get cavities and just make my teeth more unhealthy than they are now and I have always had really healthy teeth. Does anybody have any advice at all???? I have had blood taken for to make sure that I had no infection. And everything came back normal, I have had no fever, but just HORRRRIBLE HORRRIBLE pain. it goes from my throat area to my jaw up to my ear, my cheak and it hurts to put my hair in a ponytail because its pulling on some hairs... on that side of my head. I have never shook this bad or twitched this bad. It doenst feel like RSD pain though, its not burning in my mouth... but my rsd symptoms on my right side are worse until I had the infusion. The only thing I still have besides my normal rsd muscle achy pain is the bad twitching. am i making any sense? can someone help me? My mouth is so bad, I have no idea what to do. Its been 2 and a half weeks and I would have thought the pain would have gone by now
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Old 06-06-2010, 03:29 PM #2
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Dear Hannah,

Is there some kind of block that is available for the face and head? Perhaps that would help? I'm so sorry, I don't know what else to suggest...especially since the ketamine didn't work, and infection has been ruled out.

If the meds aren't working, I would caution against taking too many in an effort to gain relief. Once you get to a certain point, their effectiveness starts to wane and you're not doing yourself any good by just popping the pills.

Another thought - have you tried methadone? Just 5 mg of methadone a few times a day worked wonders for my nerve pain last year when started to get really out of control. I had an an awful time with occipital pain in the back of my head.

I will keep you in my prayers. Much love, Sandy
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Old 06-06-2010, 03:46 PM #3
hope4thebest hope4thebest is offline
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Dear Hannah,
I read your post and I felt so helpless in trying to offer some help to you!
I went to the RSDSA website and looked up RSD dentistry.
There is an article written by a specialist ...he is a dentist and an anasthesiologist. His name is Louis Siegelman, DDS and he has a practice in New York City. He seems expertised in the special circumstances of dental care with people who have RSD.
It could be helpful if your pain management doc or your dentist give his office a call for some guidance on how to help you! This is far too much pain for you to endure..
Keeping you in my thoughts and sending soft hugs,
Hope4thebest
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Old 06-06-2010, 04:59 PM #4
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Default Thoughts for you

Oh Hannah I am so sorry for this !!! Did they do extra anesthetics right before they finished? Were you out for the surgery? Did the Ketamine do any good? I am praying for you.
Wendy
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Old 06-06-2010, 06:04 PM #5
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Default so sorry for the pain you have

Hannah, I'm so very sorry you are still in so much pain from this! I don't have any information. just sending hopes and prayers that this will quickly diminish and disappear. God Bless!
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wishing you peace and relief! Sukadog crps2 right arm/hand since 8-28-08 (direct nerve injury)
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Old 06-06-2010, 08:54 PM #6
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Hi Hannah, I am sorry for all of the pain and suffering that you are experiencing right now. It does sound as though it is definately related to the invasive procedure that you had done. I don't know if this is in relation or not, but I did have major surgery on my left foot five weeks ago, I was under anesthesia for six hours. I did experience some major pain in the mouth and throat area for about two weeks as well as my shoulder and neck and then it slowly got better. Possibly, it could be linked to the anesthesia or just the invasion of the surgery. Wisdom teeth can be nasty without rsd. I will keep you in my prayers and I do hope this calms down for you. Do watch the pain meds, my pain skyrocketed from the dilauded and I was only on it for two days and I had no blood pressure. Definately continue to seek medical advice so they can monitor you. Warm compresses helped too. God Bless, I do hope this passes for you.

Jeanie
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Old 06-06-2010, 11:26 PM #7
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Help Hey Hannah!

I am SO VERY sorry to hear of this!!

Have you tried asking Bryanna on the Dental Forum? She is a LOAD of knowledge....maybe she could give some insight.....
Make sure you mention that you have RSD....

Here's the Dental Forum if you want to try there.....

http://neurotalk.psychcentral.com/fo...rune=&f=89that

Praying for you my Friend!!
Rae
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Old 06-07-2010, 12:54 AM #8
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Can you tell me how the pain got worse with diladid. And what did you do for pain control. What medicine or medicines worked for the pain
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Old 06-07-2010, 01:45 AM #9
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Hannah -

I agree with the comments of Sandy and H4tB. That and I would suggest that you be seen by a pain mngt. doc. who specializes in facio maxillary pain ASAP. (I sent you a PM with one lead in that regard.)

This is clearly an "emergent situation" on account of which you need to be squeezed into someone's schedule within the next few days. The time to get on spread is when it's happening.

And whether or not there is going to be any delay in getting an appointment with a sub-specialist, by all means have your current doctor follow up with contacting Dr. Siegelman in New York.

Mike
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Old 06-07-2010, 07:03 AM #10
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Quote:
Originally Posted by fmichael View Post
Hannah -

I agree with the comments of Sandy and H4tB. That and I would suggest that you be seen by a pain mngt. doc. who specializes in facio maxillary pain ASAP. (I sent you a PM with one lead in that regard.)

This is clearly an "emergent situation" on account of which you need to be squeezed into someone's schedule within the next few days. The time to get on spread is when it's happening.

And whether or not there is going to be any delay in getting an appointment with a sub-specialist, by all means have your current doctor follow up with contacting Dr. Siegelman in New York.

Mike
Hello Hannah....I am so sorry for your mouth pain..It can be very aggravating... I have heard of people even without RSD having a "dry socket" which exhibits much pain after a procedure..Possible?? I have RSD in my rt. lower jaw..I understand as the pain can be aweful for days..It turns me to eating soft chow for that period of time and I have recked a back tooth just biting so hard in my sleep..I hope soon you will find answers to this...Not sure it has to be burning to be RSD in your mouth..just plain deep aching bone pain..Move forward quickly to a dental specialist and we will certainly keep you in our thoughts and prayers...

I hope for a less painful day for you...Hugz, Kathy
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