Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-11-2010, 02:46 PM #11
Jimking Jimking is offline
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The whole system is rigged to trap and expel those who have pre-existing conditions. One can find themselves in a tight spot in a hurry and its rigged that way on purpose, written by attorneys who are employed by insurance companies. COBRA was passed by congress in 1996 to help those bridge the gap, to avoid the lapse in coverage, in which insurance companies invented. But, what many don't realize if you work for an employer with less than 22 employees and or the company goes chapter 7 there is and never was COBRA to begin with. Just wait and see what loop holes there's going to be with the new health insurance laws. My prediction is not only will insurance companies make a bundle of cash they will, or already have, figured out ways to dump human beings with health issues.
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Old 06-11-2010, 03:02 PM #12
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Yes, yes . . . . The stress of it all . . . . In the middle of all of this, I've been in the process of trying to get pre auth for an scs . . . . So literally, the day after my fiancee had his first emergency surgery (so I'd been up all night in the hosiptal, he had 2 blood clots in his leg, they had to slice open his calf and leave it open for 2 days to relieve the pressure from the compartment syndrome) I'm at the pychologist for my first appt

The next week I'm there to take the pysch eval . . . . I go back this week to get the results. The guy has already told me that I have "severe" anxiety . . . . I can't wait to see how this test went Seriously, you'd think the dr would have enough brians to take into account the seriousness the last several weeks and the amount of stress it would cause on any normal person, let alone any person suffering from pain every day of their life! Yeah, I'm stressed, I haven't slept well, it's affecting my pain, which is affecting my stress, it's a vicious circle, I understand all of that very well. I just need to get this physchologist to understand that I have gone through some huge life changes recently (bought a house, moved in with my fiancee and his son), and now with all this stuff going on, he can't really judge my stress levels and anxiety over the last few weeks as my personality and life as a whole, that's just not accurate or fair. The very first thing I said to him when I met him was explaining the situation with my fiancee and that I'd spent the night at the hospital . . . . He takes notes while I'm talking, so I'd think he'd be able to remember what I say . . . . Regardless, I guess I don't have to worry about the scs for at least a couple months until this insurance mess gets all straighted out. Then I can start all over . . . .

Anyways, I digress . . . . . fmichael - I have the policy info. It says:

Under Exclusions:

Chronic Pain Treatment - Except as specified in the certificate

Now, they will not give me the certificate, however, they have told me that the certificate states that the only situation where chronic pain treatment is covered is in under hospice care. They define chronic pain treatment as any treatment for any condition where the main symptom/complaint is pain that lasts for more then 3 months. They also say that certain conditions are listed under this such as fibro, rsd, multiple back issues, endo, and a bunch of others. The company is working on writing something up for me right now to further clarify exactly why/what is excluded, so I'll post that when I receive it.
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Old 06-11-2010, 03:58 PM #13
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Originally Posted by Jimking View Post
The whole system is rigged to trap and expel those who have pre-existing conditions. One can find themselves in a tight spot in a hurry and its rigged that way on purpose, written by attorneys who are employed by insurance companies. COBRA was passed by congress in 1996 to help those bridge the gap, to avoid the lapse in coverage, in which insurance companies invented. But, what many don't realize if you work for an employer with less than 22 employees and or the company goes chapter 7 there is and never was COBRA to begin with. Just wait and see what loop holes there's going to be with the new health insurance laws. My prediction is not only will insurance companies make a bundle of cash they will, or already have, figured out ways to dump human beings with health issues.
Jim -

You wouldn't be any chance be referring to the fact that the Senate bill set up a system of "National Exchanges" without taking into account that insurance companies, registered in State X, could then use a series of Supreme Court cases on banking law to avoid almost any local insurance regulations when administering policies sold in State Y? As in, there is a reason all credit card companies are based in Delaware or South Dakota, just as so many of the publically traded companies are incorporated in Delaware: build the fewest regulations as possible, and they shall come. Something so obvious it occurred to me, but apparently not the 60 fully-staffed senators who voted for it. (My wife, also a lawyer, told me I was crazy at the time, but it had more to do with not having heard it from someone on high than anything else.)

Anyhow, the House picked it up right away and put it in the reconcilliation bill, only to have it be one of two provisions knocked out by the Senate Parlimentarian, as lacking any federal fiscal relevance. Now the Democratic leadership has said it will attach it to a "must pass" appropriation bill or the like. We shall see . . .

Mike
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Old 06-12-2010, 05:14 AM #14
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Originally Posted by hollyk24 View Post
So, i found out the new insurance doesn't exclude rsd exactly, it just excludes coverage for any chronic pain treatment. So techinically it would cover things like pt, but it wouldn't cover any meds or pain management at all. But I've been told several different things in the last few days, so I'm waiting til I get it in writing . . . . I've been told rsd was specifically excluded (along with fibro. etc), I've been told it's just the pain managment, I've been told it's only chronic pain treatment . . . . I'm sure I've been told some other things too, but I can't remember them now.

I tried to go the preexisiting route, but the said because the new policy excludes the treatments, it didn't matter. I've tried every angle I can think of here It's not a union, it's actually an ESOP, and it spans over several states. You'd think since it's employee owned it would be easier or something, but nope

In Oregon, group policies can't have these kind of exclusions at all. I talked to the CA Insurance Commision, and they wanted me to send them a copy of the policy, which I'm doing. It does say clear as day in the exclusions "Chronic Pain Treatment", and the HR dept here is working on writing something up for me using some procedure codes I got from my doctors office (just for my normal monthly visits) saying that with the new policy they would not be covered and are specifically excluded. BOLI's office that oversee's benefit packages is also looking into the legality of this one, and I am seriously considering filing a complaint with them. But, I also have to consider the fact that if I want to hire a lawyer and pursue this I will likely lose my job - that's just how my company is. They will find a way or reason to fire me if I pursue this so I will have to tread carefully. I want to make sure my company compensates me for this, but I also want to preserve my job.

As to the survey they had us fill out, I found the email with the link, and it was still up online! So I was able to go back and print it out. And wow!!!! First off, it was not anonymous! It asked your first and last name, birth date, height and weight, as well as any dependants. Then went on to list a bunch of diseases asking if you had them or not, incuding HIV, mental illness, drug addiction, cancer, heart problems, etc. Talk about HIPPA voilation! Then it asks if you were disabled in any way, what meds you were on, how long, why, if you've been told you may need surgery in the future, what you thought your medical costs would be in the next year, and a few other questions. It ended with a paragraph about insurance fraud and about how if you intentionally lied or omitted information it could be used to deny you coverage in the future. All this was done on . . . . . SURVEY MONKEY!!!!! And according to the email, all employees, whether you were on the companies health insurance or not had to take the survey.

On a good note, I think we may have a found a workable solution We are considering getting married now, just a quickie in front of a judge thing, and then still have our real wedding later like my mom is planning, that way I can get on his insurance. He is a federal employee, so all his benefit info is online, so I was able to do all the research while he is home recovering and just bring him the info. I found a plan that would still cover everything I need, and be cheaper then what he is paying right now even when he adds me on (thankfully the feds only have individual and family plans, and he has a son, so he was already on fam, adding me on doesn't make a huge jump in price). So I was able to find a cheaper plan that still covers every single one of my meds and doctors, doesn't have a dedcutible, no waiting periods, exclusions, preexisting, decent copay, and will cover all his/his son's needs to, and save him some money. I think he feels good because he gets to be the 'hero' in the situation My mom even thinks it's a good idea, which I'm surprised at. But she realizes how important it is that I have health insurance and that if it lapses how hard it's going to be that she can over look the fact that I'll be married a few months before my wedding . . . .

I've talked to a couple other people at my work who were affected negatively by the change in insurance, but not to the extent that I was.
Hi,

It looks like you are finding a solution. You must be very relieved. I just have one question? I live in NJ and I quess I'm lucky I do. NJ has quite a few laws regarding health insurance and the carries have to abide by them such as pre-existing conditions, example if your company should switch insurance companies and you have any condition they can not say will cover you for this and not that it's just not allowed. It was put into law about 10 to 15 years ago. I quess what I am trying to say is what is the law is Oregon, I believe that's where you said you live, even though the main office is in CA they have to abide by Oregon Law. I would contact your state insurance board I believe each state has one..


Good Luck
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Old 06-12-2010, 06:44 AM #15
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Default This scenario is just the start I'm afraid

After working with the Medicare SHIP Program for 2 1/2 years and watching the radical changes in Medicare along with supplements on all insurance I've learned a few things. When Medicare Part D drug plan was implemented almost 6 years ago Bush was praised for finally doing something - yep he did. Oh, and he had the bill written so it wasn't even funded till 2010 hence we saw the average drug plan start at $15 per month now costing on average $65 when the deductible expenses are also divided in. Also considerably higher co-pays on everything. Didn't anyone look at the small print?

You're now a front runner hitters where the rest of us will soon join your ranks as insurance bails over this medical problem or that. Problem is, health care simply costs more than we can afford to pay so instead of inflating the premiums to cost levels that will have subscribers dropping like flies, it appears this insurance company decided to place a waiver instead. Sorry folks, but we're only scratching the surface of more to come along with even greater price hikes that are going to put us all in the poor farm.

Right now an average person on Medicare with the drug plan plus a supplement is paying an average of around $300 apiece for insurance not including co-pays on medications or the rest of the doctor bill Medicare plus the supplement won't pay after January 1st of this year when the amounts paid was dropped by an average of 10%. That means we'll all now have a third bill to pay even when you do have a Medicare supplement.

I really feel bad for how you guys are being hit, but please move over - the rest of us are also on the same sinking ship, we just don't know it or are choosing to deny it. Now isn't this a great case of when the truth really does hurt.

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Originally Posted by hollyk24 View Post
I'm in quite a situation - My employer is changing our health insurance, and ALL 4 choices they are offering all excluded rsd for treatment or exclude chronic pain conditions for treatment!!!

Oddly enough, about 4 months ago they had us do a mandatory survey about our health, confidential of course, asking very specific info about any diagnosis or medication we were on or had received, and other health related info, in order for them to "shop" out some health insurance companies. I'm almost certain that they used this info, and when the prospective insurance carriers saw rsd/crps they told them it would be $$$$$$ for any policy, so they decided to get policies that would exclude any treatments.

I'ts really messed up, I've talked to the Oregon Insurance Commision, and if the policy's were out of Oregon, they'd be illegal because group policy's here can't have those kind of exclusions, but my coprorate office is in CA, and that's where the policies were purchased, and I guess it's legal there. I'm in the process of hiring a lawyer, the first one I called just happened to have a mother who has rsd in her shoulder, so I figured that was a sign. She said because they did the survey first I have a case for discrimination against them as they can't ask you what your medical conditions are and then shop for insurance like that. But in the meantime, my coverage runs out at the end of June. No one is gonna give me an individual policy, at least not one I can afford. My only even semi viable option is a quickie wedding to my fiancee so I can get on his insurance, but he is just recovering from getting out of the hospital from having serveral surgeries himself from compartment syndrome on his leg and almost losing his foot.

I'm not sure I really have a question . . . I guess I'm looking for ideas. I know I won't qualify for any insurance/government options because I have income and a job and am offered group coverage even though it excludes me, but it seems like there has to be something out there, right? I've called everything I can think of . . . . .
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Old 06-12-2010, 07:48 PM #16
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Im not sure why exactly, but when I spoke with the Oregon insurance commisioner, they told me since it was a California policy, that Oregon's laws wouldn't have jurisdiction over the matter

Oregon law wouldn't allow this to happen, it's similar to NJ. But CA seems to have some pretty lax insurance laws or something, every place and person I've talked to at a state or federal level has said they'd look into the policy, but that it seemed to be within CA's laws . . . It seems wrong that a company that is located squarly in Oregon can do this, it's complicated how we are even connected to the 'main' company in CA, and our health insurance has always been seperate for the entire history the company has been in operation.
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Old 06-12-2010, 11:06 PM #17
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It seems wrong that a company that is located squarly in Oregon can do this, it's complicated how we are even connected to the 'main' company in CA
I'm not sure they can.....that's why you can't currently buy insurance across state lines right now, due to state restrictions (repealing the health care bill might repair this though).

This sounds so wrong! I'll bet it is. A little more homework needs to be done....
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Old 06-13-2010, 12:07 AM #18
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I thought it was wrong to, but that was straight from several people at oregons insurance commision's department - they said since the company's corporate office is in CA, and the policy was out of CA, CA laws applied I know in most all other situations it would he the opposite case, but they told me it's where the policy is purchased that determines what laws govern it. I'm still not totally SOL on it, because BOLI (Bureau of Labor and Industries) is looking into the policy, they have a division that regulates companies benefit packages and I've talked to them and mailed them all the policy info and all the documentation and other information I have about the whole situation, so it's possible something could come out of that. The lawyer I'm considering hiring recommended I try that route first, if BOLI finds merit in my complaint they could require the company to rectify the situation or compensate me, but if I go that route I'll likely lose my job, so that's something I have to take into consideration too. While totally wrong and illegal for them to fire me in retaliation for filing a complaint, the fact of the matter is my company is directly related to the housing industry and could easily 'lay me off' instead of fire me if they wanted to get rid of me.
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Old 06-13-2010, 06:38 AM #19
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I thought it was wrong to, but that was straight from several people at oregons insurance commision's department - they said since the company's corporate office is in CA, and the policy was out of CA, CA laws applied I know in most all other situations it would he the opposite case, but they told me it's where the policy is purchased that determines what laws govern it. I'm still not totally SOL on it, because BOLI (Bureau of Labor and Industries) is looking into the policy, they have a division that regulates companies benefit packages and I've talked to them and mailed them all the policy info and all the documentation and other information I have about the whole situation, so it's possible something could come out of that. The lawyer I'm considering hiring recommended I try that route first, if BOLI finds merit in my complaint they could require the company to rectify the situation or compensate me, but if I go that route I'll likely lose my job, so that's something I have to take into consideration too. While totally wrong and illegal for them to fire me in retaliation for filing a complaint, the fact of the matter is my company is directly related to the housing industry and could easily 'lay me off' instead of fire me if they wanted to get rid of me.
It sounds like you're getting good advice. But keep in mind that a "lay off" is still a termination, just one allegedly not done for cause. And from what little I've read, a "reduction of force" of the one person who just happened to file an administrative complaint against them, should be enough to raise eyebrows all the way around.

Mike
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Old 06-13-2010, 07:50 AM #20
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I am sorry for this added stress and also for your boyfriends health problems. I agree with the other poster that sometimes how doctor phrases something may have a better chance of being covered. I also wonder if some treatments for rsd like nerve blocks or what ever would be considered surgery vs treatment though if it is for chronic pain then it may still be the dame. I hope you get some firm answers and of course that are in your favor
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