Hi WCD,

Welcome to NT !

Get ready to start your research ! No one thing works for all of us.....or is approved by insurance.

I tried accupuncture, but it was not covered by insurance and after investing a few grand, I quit because I was not seeing any lasting results.

I would be interested in pursuing an implantable pain pump, but my docs are not knowledgable or enthused about that option.....so far.

Hey sorry to hear you have this........it does suck, but from what I have heard the pumps do work very well, BUT they are usually a last resort. What medications do they have you on for this?? And they usually start one off taking pain meds or using pain patches before they start cutting on one to insert a pain pump or an SCS.

You really do need to research before getting a pain pump. And the rsds.org site is one of the best sites on line for RSD/CRPS.

Not being afraid is one thing that has helped me. When I first got this in '03 I was totally petrified, but alot of of my fear was due to the pain I was in. Once my PM doctor helped me get it under more control I was able to educate myself. When in horrilble pain it is so hard to just think. I have it in both feet. But education does help. It gives one all kinds of options & your doctor sounds like he is not scared to try things to help you with pain. Some doctors just won't do all that much. Especially ones that won't prescribe pain medication.

DebbyV

ps, but the way the boys in the picture with me are my grandsons & this was taken back in '06.