NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   denial of rsd (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/12536-denial-rsd.html)

GalenaFaolan 02-06-2007 07:27 PM

Awesome! They have clothes, like comfy sweatpants, wrist bands, pens, bags, etc. It's awesome. As soon as I get some money free I'm going to get another sticker (the one I have has been there so long it's beginning to fall off!) and maybe a few other things.

Hugs,
Karen

InHisHands 02-08-2007 08:03 PM

Hello, INSIGHT!
 
Quote:

Originally Posted by Insight (Post 67272)
Dear Hands,

I just sent a long message about our daughter's experiences with RSD, but I'm not sure it got sent. I'll briefly re-state the message just in case. Our daughter was tremendously helped by Dr. David Sherry of the Children's Hospital of Philadelphia. His waiting list was too long, so we bought his DVD and gave it to a local physical therapist in our (large) city. Dr. Sherry graciously offered to have his staff and him consult with our PT. Our PT put our daughter thru 3.5 gruelling weeks of full-time (9AM - 4PM) physical therapy. Some improvements started after a few days. Dr. Sherry recommended that she not have any pain meds or anesthesia, so our daughter toughed it out on her own. Full function returned by the end of treatment. Her pain decreased during treatment, but didn't fully dissapate until several months later (after her treatment had already ended). About one year has passed and our daughter is symptom-free. Hope this is helpful.

Hi there. I would love to talk some more with you regarding this. I tried to reply to your message, but I got a message saying that you cannot receive PM's.

I'd love to ask you some questions. Are you willing to talk some? Maybe we could start a thread to discuss it, or email.

Hope to hear from you. I am a teen, and so I'd love to discuss your daughter's treatment/ results.

Thanks. :)


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