Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-09-2012, 02:08 PM #10
blueskies blueskies is offline
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blueskies blueskies is offline
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Hi Gabby,

It sounds like you've been through quite the experience. I'm sorry to hear about all of your procedures, but I hope that you are starting to feel better and regain some of your function. I am not an expert in ketamine, as I am an occupational therapist, and not an MD, so this is not a treatment option for me and therefore I must explore alternatives that are within my scope of practice. Luckily, much of the alternatives I find seem to be more holistic in the sense that they balance the entire mind and body's state of arousal, and therefore affect all of the physiological systems at once.

For contracture, I have had very good success using ETPS with deep dissure massage and perhaps static-progressive or dynamic splinting over a long period of time. Splinting in this fashion helps to elongate, and sometimes release the tissues, whereas ETPS seems to somehow (and I have no idea how) release some of the scar tissue. I have used it with some very significant scars and saw some amazing results. Most OTs/PTs don't use this technique, so find someone in your area who has been trained in ETPS. ETPS also apparently helps with CRPS, but I have yet to use it with this condition, so I would reserve judgment until I do so.

I would recommend for everyone here that they explore Qi Gong and mindfulness meditation first, and neurofeedback second. I am a very scientifically oriented person, and I recommend meditation and Qi Gong based on observation and also research. I personally would combine mindfulness and Qi Gong with neurofeedback.

Perhaps you might also look into the literature on transcranial DC electrical stimulation (tDCS), as well. I haven't investigated whether this has been used in CRPS, but I imagine it has. tDCS is a very safe procedure whereby a small DC current is sent through various parts of the brain. Go to pubmed and search for it--you will be impressed at the research. It is similar in efficacy to transcranial magnetic stimulation.

Since tDCS is more invasive than neurofeedback, it is not something I incorporate into my practice, but I present it to you for informational purposes only. I don't recommend you pursue DC stimulation by yourself without first consulting an MD/psychiatrist who specializes and has experience in the area. (There aren't many.) If you find someone who specializes in it, you should be able to buy a unit for around $4-500 dollars and do it at home with instructions from an MD.

Hope you are feeling better... and I hope this information helped!

-Jonathan

Quote:
Originally Posted by gabbycakes View Post
Jonathan,

Great information. Thank you for all the time to post. Just quickly I had a radial head fracture of my right elbow with a collateral ligament tear. 1st surgery radial implant, second manipulation under anthesthia, third contracture release. Then I meet the wonderful doctors as the Hospital For Special Surgery. First met Dr. Daniel Richman who Dx. my RSD and then met and if your in the OT business I know this name will be farmiliar Dr. Robert Hotchkiss. Between the 2 doctors and there unbelievable experience went through another contracture release, an ulnar nerve transpostion another manipulation under anthesthia, and an neuroma surgery. Then to get the RSD under control during all this had 14 SGB, 3 - 5 day inpatient ketamine procedures with Dr. Richman and the follow-up boosters with Dr. Schwartzman in PA.

I have done some reading on neurofeedback and acupuncture and would love to try it. At this point I have come a long, long way with my injury. Work PT go to the gym and take very little medication if any at all. My right arm will never be the same but before I met the doctors at HSS I was told I would only get 40% or less back and currently I would say I have 85% back. I think the future of Pain Managment is going to lye in treatments such as neurofeedback, acupuncture, PT and the likes. The ketamine is a great tool and yes it did get my RSD under control and I believe avoided spread but it's not a complete solution to the problem and again just my opinion it's only a bandaid and a expensive one at that. I would be interested in any info. you have to share.

thank you again,

gabbycakes
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