[abrown176]

Hi everyone! I feel as if I brought this flare on myself. After being on the same pain meds for over a year I felt as if it was not working well anymore and so I went into the pain doc and told him. He then wanted to try oxy contin so I said sure. The meds were working but the side affects were hard to deal with. So I went back and told him I needed something different and he gave me MS contin. This medication did not work at all and now after 2 weeks of trying it, I am in severe pain and flare up. I feel crazy as that I felt like the other meds were not working and truly they were. I just was not having the relief I once felt. I know they were working some as that now trying the ms contin I have no relief and am to my breaking point with this pain. It is terrible. I went to the doctor today and he gave me dilaudid 4mg every 4 hours and said that if it did not work to call him right away and not to wait. Has anyone esle had luck with dilaudid. He said if it works then he would put me on extended release jurnista. Thanks to anyone who could share there experience with dilaudid. Thanks a bunch!!

[RUReady]

Sorry to hear you are in a flare...I use Dilaudid for break through pain relief . I think you will find everyone is different and how we respond to medications will differ as well . I have gone through trials with quite a few of the "normal" meds for RSD and had unique responses to most , from vision problems to hallucinations . As for the Dilaudid it does help when I am in a bad flare , but that is me . Hope you find the right fit for you ! Take care and hope you are on the upswing and are feeling better soon .

[abrown176]

Thanks RUReady. I felt that if I had stayed on the same meds that I would not been here. I thought the meds were not working but they were but not to a totally comfortable level. This ms comtin on the other hand did nothing for the pain and then is when I realized the other was working because now I was in severe pain. When I told my doc this he decided to go back to something in the same family of drugs I had been taking that had been working. Thanks for telling your experience of dilaudid. It helps just knowing how it has worked for others and hoping it works for me.

[hannah1234]

Does or has your doc change your medications seasonally? Like during summer less, and winter more because its the hard months?

My doc changes my meds seasonally, so my body doesnt get used to them, so I can take them 4 months after I stopped and get more relief so my body isnt used of it. Does that make sense?

[hope4thebest]

HI ABrown,
Four days have passed since you posted and I hope your flare is quieting down. I don't have any information to offer about dilaudid, but I did want to say that the at least now you can rule out the other med options that your doc tried and move forward with other choices. hannah's doc has a unique rhythm of administering meds..it makes sense to prescribe seasonally, or any other intermittant way, and this way the body doesn't build up a tolerance!
It's so hard to know if the pain is increasing, or if the med is simply no longer effective on the current level of pain. It would be an interesting question to ask the doc's..
I truly hope the week-end and the dilaudid brought you some relief..
Hope4thebest

[hannah1234]

Oh I am on Diladid because I had my wisdom teeth out and over a month later I was still flaring so I was taking it. I take 6 or 8mg every 3 hours plus a whole more cocktail of drugs. I do notice when I DON'T take it.... even like 30 minutes after the 3 hours. my dr told me to try to get to 4 hours the longer I went, and not good. I dont know about it with regular rsd pain though... except when my face flared (not sure if I have RSD in my face from it) from the wisdom teeth I had to take it, and am still taking it well over a month after surgery. Best of luck to you!!!

[firegirl]

I take lots of meds, but for pain I take Oxycontin 30mg twice a day & Oxycodone 30mg, Marinol 10mg(thc pills) & Dilaudid 4 to 8mg. I only take the Dilaudid when I really really need it. When I get real bad & have to go to the ER, they give Dilaudid in an iv & ativan iv. I dont want my body to get too used to the Dilaudid so that when I'm real bad it will work better. I've tried just about every pain med on the market & this mixture seems to work best, but I am still in constant pain of a 7 to 10.

[abrown176]

Hi everyone. Thanks for the info. My doc does not change me meds seasonally. I did have the SCS and it was helping but had to have the battery removed due to inflamation around the battery. It has been 2-3 months and we are trying to find something that can manage my pain and not have horrible side effects. I thought I was coming out of it but then went for a sleep study two nights ago and they stuck things on my leg to monitor the movements and now it is back again. Pain Pain go away! I have been spending most my time in bed and knocked out due to the dilaudid. It is not a great way to live but I have got to try so I can get through this flare. Going back to bed. Thanks all and keep me in your prayers and I will keep all of you in mine.