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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-28-2010, 05:09 AM
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Magnate
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Keep smilin thanks you have such words of comfort and wisdom
Finz for me it is a catch 22 sometimes when I have to be somewhere I can do it but I have also had to cancel. The other issue is with set plans is that it causes extreme anxiety before hand. Like if I don't feel well etc worries. So that is a stress in itself. I can very much relate to the lack of sleep. I guess it is just about doing the best we can in a bad situation and creating the best life we can with the limits we have. |
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| "Thanks for this!" says: | Kakimbo (06-29-2010), keep smilin (06-28-2010) |
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06-29-2010, 10:00 PM
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Hey everyone!
I love your posts. I understand them and I feel at home to respond and share with all of you. Thank you for being honest about your hurts and your fears. This monster honestly scares the crap out of me and I feel very alone in my thoughts. I am having very contriversial (sp?) treatments and noone that I know has any knowledge of them but me and my doctor. It's very scary. This board has brought me out of my shell and has given me a sounding-board to feel secure enough to share and ask questions. Without all of my friends here I would not be where I am with treatment or faith or the ability to cope. I have learned more from your posts than I could ever learn from a "trained professional". I only hope that I have influenced one person and helped them to feel better. That would be my goal; just to have aided someone to have a better sense of relief and a sense of calmness. Love to all... Kim
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06-29-2010, 11:15 PM
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Yay!! Please enjoy and relax yourself. You deserve it!
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06-30-2010, 10:37 AM
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Kim.... Oh..Me!!!! me.. let me be the person you have infleuenced...and I ain't whistling Dixie, Kim.... You are a darling and I am so happy to know you...... SO nice to read your sweet complimentary post...thank you for all of it!! I know it came straight from your heart and I am so appreciative of it.. Much love for a pain-less day!! Kathy 
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| "Thanks for this!" says: | Kakimbo (06-30-2010) |
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06-30-2010, 10:09 PM
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 Well I find my self "pushing through the pain" during my working hours then when I get home I am literally done. I then tend to sit in my recliner or lay in my bed. Take my meds and veg out until the next day, when it starts all over again. On my days "off" I tend to sleep in until LATE morning, get up take my meds, maybe throw some dishes in the dishwasher and clothes in the dryer. Sit in the recliner and just let my body rest as much as it can. I am sure that I will not be able to keep this up for long but I am trying hard to participate in life as much as I can. Just pay and pay for that. z
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| "Thanks for this!" says: | hope4thebest (07-01-2010), Kakimbo (06-30-2010) |
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06-30-2010, 11:22 PM
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Me too pooh.
It sucks. If I am figedy (sp?) I will wander around my house (all 900 sq.ft. of it!) just to try to stay busy. I was used to being 100 miles per hour and now I am negative 10. My mind still thinks on hyper-drive, but my body is in reverse. It's hard when I can't keep up with myself. Even harder when I try and pay for it for three days afterward...Don't like this at all! i need to find a happy-medium where the two can co-habitate.
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| "Thanks for this!" says: | hope4thebest (07-01-2010) |
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06-30-2010, 11:34 PM
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h4tb...
Your plans sound wonderful, and very busy! I hope you enjoy each and every moment of them. Please tell MsAndrea that we all wish we could be there and we thank her for all of her accomplishments. She is a true force on nature and very glad she is rooting for herself and for us! Hope you have a wonderful time! Kim
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| "Thanks for this!" says: | hope4thebest (07-01-2010) |
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07-01-2010, 12:18 AM
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ks...
You're gonna make me cry! Thank you for that! You have truly inspired me because of your inspirational (sp?) wisdom and compassion. I thank you for being so uplifting always and such a wonderful friend. Wish I could hug you for real! Kim
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| "Thanks for this!" says: | hope4thebest (07-01-2010) |
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07-01-2010, 05:24 AM
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Magnate
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I always feel this board of people are so caring and educated too. It amazes me how people who are going through so much can be so caring to others. I have been inspired and taught so much by this board.
Kim I can really relate. Pre RSD I was so active and now sometimes if I moved any slower I would be going backwards. I get the jitters too yet my leg traps me it feels like there is a huge wall up as a barrier. That is my goal is to find a happy medium. That comes with a lot of trial and error. Especially since one day something impacts different then another. Hang in there all |
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| "Thanks for this!" says: | Kakimbo (07-01-2010) |
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07-01-2010, 06:48 AM
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Ok, so I wrapped my arms around my turso and squeezed hard..Consider it done..you hugged me!! And I, you..Thank you my friend... Have a wonderful day!! Pain-less... Love, Kathy
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| "Thanks for this!" says: | Kakimbo (07-01-2010) |
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Kim~... I thank you!!!!!!
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