Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-25-2010, 10:41 PM #1
Lisa in Ohio Lisa in Ohio is offline
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Unhappy Venting!

Hi friends, I just need to let off some steam. I called my PM doc about increasing or adding something that would help reduce my ever growing pain. I know that there are many meds out there that could help, but the doc seems almost afraid to prescribe them. Once again he prescribed percocet, which I have taken for many years now so that it is not very effective. I think that the government cracking down on these doctors that run pill mills are making legitimate doctors afraid to prescribe pain relieving medications that could potentially help. I am just so frustrated I don't know what to do. Meanwhile back at the castle I wait for the slow wheels of WC to approve treatment. Thanks for being there, Lisa
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Old 06-25-2010, 10:52 PM #2
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Laugh I hear ya

Lisa; I hear ya there,,,I had problems the same way,,,,You can be very forseful with the P.M and demand stronger pain meds or look for another Doctor. I had to search for 3 years before I found one who A.) understands and B) is willing to make an effort to have a sword fight with this demon and win. Don't give up hope. I'm sorry for your pain and hopes it gets reduced soon. Sometimes docotrs need to be pushed and reminded since your paying the bill,,he/she works for you. Keep safe and feel better soon...mellowguy
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Old 06-25-2010, 11:05 PM #3
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I'm sorry Lisa......I literally feel your pain on that one !

I've been seeing lots of Michael Jackson stuff on tv as it is the one year anniversary of his death. At age 50, he could dance through entire concerts yet can convince a doctor that he needs anesthesia to sleep......and we can't get decent pain relief to lead a semi normal life. Grrrrrrrrrrrrrrr
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 06-25-2010, 11:06 PM #4
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Lisa , That is indeed troubling . Not sure how W/C works in your state but do you have the option of possible changing doctors ? In Fl you have a one time change provision . I was able to change one of my doctors who was not as proactive as I liked . My W/C attorney had the list of local docs for various practices and he also had a pretty good insight into their practices and how they handled these situations . This was a godsend as the Doc I was switched to has done a 180 in the positive direction with my overall care . Hope you are doing better and take care !
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Old 06-25-2010, 11:57 PM #5
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BOO!!!

I have had HUGE trouble finding a good PM. I think this one is my fourth or fifth. I love him! He doesn't listen to his peers when it comes to my pain and he's willing to try different things (off the wall stuff), but I trust him and his philosophie's (sp?).

The most important thing is that HE LISTENS. He once told me that he understands RSD so well because he had a bad case of Shingles. He knows the pain and the inability to escape from it. YAY for me! (sorry to be mean, but FINALLY someone can relate!)

I've been seeing alot of MJ stuff on TV too. What about Farrah who struggled for so long with cancer. The media even forgot to honor her during the awards show. Kinda like us silent sufferers.

I would much rather prefer to suffer in silence than to make a fool of myself just to get the attention. I am so glad to have each of you here with me. I don't wish this beast on anyone; but it is good to have someone who can relate.

Wishing you all a peaceful and pain-free night/morning.

Happy Summer!

Kim
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Old 06-26-2010, 12:07 AM #6
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Default Breath

Breath deeply my friend. This shall pass and you will find relief...

I find I need to remind myself this all the time because I have short shallow breathing due to my pain.

The following is from Dr Andrew Weil's site and they are good exercises to help us through.

[QUOTE]Exercise 2:
The 4-7-8 (or Relaxing Breath) Exercise
This exercise is utterly simple, takes almost no time, requires no equipment and can be done anywhere. Although you can do the exercise in any position, sit with your back straight while learning the exercise. Place the tip of your tongue against the ridge of tissue just behind your upper front teeth, and keep it there through the entire exercise. You will be exhaling through your mouth around your tongue; try pursing your lips slightly if this seems awkward.

* Exhale completely through your mouth, making a whoosh sound.
* Close your mouth and inhale quietly through your nose to a mental count of four.
* Hold your breath for a count of seven.
* Exhale completely through your mouth, making a whoosh sound to a count of eight.
* This is one breath. Now inhale again and repeat the cycle three more times for a total of four breaths.

Note that you always inhale quietly through your nose and exhale audibly through your mouth. The tip of your tongue stays in position the whole time. Exhalation takes twice as long as inhalation. The absolute time you spend on each phase is not important; the ratio of 4:7:8 is important. If you have trouble holding your breath, speed the exercise up but keep to the ratio of 4:7:8 for the three phases. With practice you can slow it all down and get used to inhaling and exhaling more and more deeply.

This exercise is a natural tranquilizer for the nervous system. Unlike tranquilizing drugs, which are often effective when you first take them but then lose their power over time, this exercise is subtle when you first try it but gains in power with repetition and practice. Do it at least twice a day. You cannot do it too frequently. Do not do more than four breaths at one time for the first month of practice. Later, if you wish, you can extend it to eight breaths. If you feel a little lightheaded when you first breathe this way, do not be concerned; it will pass.

Once you develop this technique by practicing it every day, it will be a very useful tool that you will always have with you. Use it whenever anything upsetting happens - before you react. Use it whenever you are aware of internal tension. Use it to help you fall asleep. This exercise cannot be recommended too highly. Everyone can benefit from it.

Exercise 3:
Breath Counting
If you want to get a feel for this challenging work, try your hand at breath counting, a deceptively simple technique much used in Zen practice.

Sit in a comfortable position with the spine straight and head inclined slightly forward. Gently close your eyes and take a few deep breaths. Then let the breath come naturally without trying to influence it. Ideally it will be quiet and slow, but depth and rhythm may vary.

* To begin the exercise, count "one" to yourself as you exhale.
* The next time you exhale, count "two," and so on up to "five."
* Then begin a new cycle, counting "one" on the next exhalation.

Never count higher than "five," and count only when you exhale. You will know your attention has wandered when you find yourself up to "eight," "12," even "19."

Try to do 10 minutes of this form of meditation/QUOTE]


Wishing you wellness and peace.

MsL
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Old 06-26-2010, 01:22 AM #7
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Hi Lisa,
I agree with the others that it might be time to find a new doc who is willing to give you the full attention and treatment that you need!!

Before jumping ship, you may want to insist that he have a conference with you, so that he can hear you and listen clearly to your pleas for help, and to talk about the fact that the percocet may no longer be adequate..
If he is still unwilling to help you, then it might be time to find another doc who attends to you!
In the meantime, Mslday has some good suggestions for ways to reduce your pain and anxiety through breathing and relaxation...It does help!
don't give up, friend!
Many hugs,
hope4thebest
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Old 06-26-2010, 01:48 AM #8
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Quote:
Originally Posted by Lisa in Ohio View Post
Hi friends, I just need to let off some steam. I called my PM doc about increasing or adding something that would help reduce my ever growing pain. I know that there are many meds out there that could help, but the doc seems almost afraid to prescribe them. Once again he prescribed percocet, which I have taken for many years now so that it is not very effective. I think that the government cracking down on these doctors that run pill mills are making legitimate doctors afraid to prescribe pain relieving medications that could potentially help. I am just so frustrated I don't know what to do. Meanwhile back at the castle I wait for the slow wheels of WC to approve treatment. Thanks for being there, Lisa
hi lisa im new to this forum but they are putting a big amount of pressure on doctors precriping pain meds .if you need them i dont see a problem
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Old 06-28-2010, 06:55 AM #9
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Hi Everyone,

I'm dealing with this also. I have tried vicodin and percocet with no help at all. It was like I didn't take anything. I have been taking oxycodone with varied results.

I have had extensive conversations about pain medications with my PM. Generally, the motto is that if you don't take pain medications more than twice a week, you're not going to become addicted. I only take pain meds for when I have a flare. So, if you are in pain, rest assured that if you need them, you're ok if you only take them twice a week.

I talked with my pm doctor and said I would gladly take regular tests to show that I'm not addicted. That's not the issue. The issue is that I am in pain and I need something that actually works. It's very hard for them to understand the level of pain that we are in.
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Old 06-28-2010, 01:09 PM #10
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dealingwithtos,

OMG!!! I do not agree with your statement at all. I would be in a loony bin or most likely dead if I could only take pain meds twice a week. I take a steady dose every 8 hrs. Like I said, if I didn't I would probably be dead by having committed suicide by 2005. The burning pain in my feet would be a 10++++............ It can hit a 10+ even on pain meds..........

I am not addicted either. I have a tolerance to them, yes, BUT I am not addicted. Additction & tolerance are two completely different things. I have never once been 'high' taking them either. If anything, my thinking is much clearer because now I don't have that never ending 10+ pain going on. Am I out of pain completely? No. I still have pain. Pain meds have only made me comfortable enough that I can deal with the pain I still have until it flares.

So that 'you can't get additected if you only take pain meds twice a week' is bs. Because I take them more often, but I not addicted.

DebbyV
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