[mom of 3]

just wondering if any one else has this problem, I have the SCS and have no problem showering but I recently tried to get in the pool with my girls and couldnt believe how strong the vibrations were it went all the way to my neck..and its only in my legs. also we recently went on a trip and driving through the mountains was horriable because again the vibrations were to strong. but to turn my device down the spasms in my leg made it where i could barely walk. anyone who has any answers please let me know...I cant imagine not going in my pool again.

[hannah1234]

I have to turn my SCS down when I go in a pool as well. Don't stop going in pools if you can, they are the besssst things for RSD because there is no impact. Was there any type of electricity on in the water like the pool sweeper? thats the only thing I can think of... But I do have to turn my scs down about 1/2 way when I am in a pool. But showers are fine for me

[Rrae]

Sorry for the frustration momof3
Swimming is about the only exercise my body can tolerate at this point, so I was very anxious to get back to swimming after my post-op restrictions were done.
After 8 wks, Dr said it was ok to swim.....but he did say to make sure to turn OFF the stimulator. ? He's always in such a hurry and I feel like I'm talking to the back of this guy's head , so needless to say he didn't expound upon the subject and I didn't chase after him for more details.....

So, maybe we can try Googling that question

The input Hannah gave makes sense, so see if you are able to still swim with the stimulator turned down lower..... geeeze, I'd had to see you get leg spasms and cramp up while in deep water.......that would not be good!

Not sure about the altitude change either. Hopefully someone will come along with more input......
Rae

[keep smilin]

Originally Posted by Rrae

Sorry for the frustration momof3
Swimming is about the only exercise my body can tolerate at this point, so I was very anxious to get back to swimming after my post-op restrictions were done.
After 8 wks, Dr said it was ok to swim.....but he did say to make sure to turn OFF the stimulator. ? He's always in such a hurry and I feel like I'm talking to the back of this guy's head , so needless to say he didn't expound upon the subject and I didn't chase after him for more details.....

So, maybe we can try Googling that question

The input Hannah gave makes sense, so see if you are able to still swim with the stimulator turned down lower..... geeeze, I'd had to see you get leg spasms and cramp up while in deep water.......that would not be good!

Not sure about the altitude change either. Hopefully someone will come along with more input......
Rae

Hello Mom..Rae and Hannah..

Just a thought but do you have a SCS management person who over sees your SCS?? If so, possible jingle that person to ask..I have 3 representatives who would add programs and maintain my unit...in the mean time, I would try just turning it off as there seems to be a connection to the pool water and your unit..better safe than sorry least until someone can explain why you are having these intense unit activity...

Hugz, Kathy

[hannah1234]

Yes I agree.... I haven't swam in about 6 months.... I hope to go next week when we go to the desert with the warm weather! I live in Los angles and its been overcast and in the 60's!!! I agree, TURN off the stimulator!!!

[edever34]

I have had my SCS for 3 years now, Mine is lamanectomy type. I was always an avid swimmer (till RSD) but the pool is my haven . I go every day into the water and have NEVER experienced what you are describing!!!! I suggest that you get with tour Rep. as soon as possible to discuss this problem and maybe you need a reprogramming. Hope this helps. Fondly-Carol