[dreambeliever128]

http://www.foxnews.com/story/0,2933,595796,00.html

I hope you can get to this site. I am so slow at figuring things out to copy and paste.

Fox News named RSD the number 2 crazy disease. I am glad they are doing these stories on it. This is the second on of late.

Ada

[cindi1965]

I'm curious...what disease was #1?

[Jimking]

Quote-

"Polyglandular Addison’s disease

Type of Disease: Hormonal disorder
Crazy Because: Can cause instantaneous death from sudden emotional distress
Cure: None, but manageable by medication

In February 2008, media reports swirled around the story of Jennifer Lloyd, a 10-year-old from Prestwich, who is one of only six known sufferers in the U.K. of polyglandular Addison’s disease. Addison’s disease is a hormonal disorder named after Dr. Thomas Addison who first described the disease in 1855. The polyglandular form is much rarer than the ordinary disorder, leaving affected patients literally unable to produce adrenaline in response to stress. Adrenaline, or epinephrine, is the “fight or flight” hormone that prepares the body for action. Without adrenaline, the body’s organs cannot respond to stress and instead go into shock and shut down, leaving those affected critically ill. Patients such as Jennifer require constant attention and steroidal medication just to live out their daily lives: "Something as simple as walking the dog can be a worry,” Jennifer’s mother told the BBC. In Jennifer’s case, even watching a movie, playing sports or dancing requires strict supervision in case she becomes overly excited. Despite the mundane outlook for Jennifer and other patients with this crazy disease, most can lead normal lives with the help of medication."

[smile357]

Since it so "unbelievable" wouldn't you think they would put more money to find a cure for RSD instead of so many doctors and people saying it is a crazy disease!!!

[msdrea83]

Right on we're #2! woo hoo!!! lol

[cindi1965]

My ex-mother in law has Addison's and it has ravaged her body for years....

[gabbycakes]

Originally Posted by dreambeliever128

http://www.foxnews.com/story/0,2933,595796,00.html

I hope you can get to this site. I am so slow at figuring things out to copy and paste.

Fox News named RSD the number 2 crazy disease. I am glad they are doing these stories on it. This is the second on of late.

Ada

Thanks so much for the information. I can't believe it came up #2. Maybe it will get more attention....Thanks again....RSD right arm 7 years.

[pacugirl]

Thanks for posting the link to this! I send these things to my family so they can understand and not think it's "in my head". They keep saying "but can't you have surgery to fix it"?

[dreambeliever128]

Wouldn't it have been nicer to be no. 2 in a pie eating contest. LOL

I still see things wrong with this story after reading it again and others point them out to me in email and facebook. I just can't figure why these people that have this still leaves so many details out or get them wrong. We need an exact story of this out there somewhere along the line.

The stories I see, mention it only in the limbs, that it can be full bodied and internally. They also mention one thing that they have found to help them or cure them. I wonder what part of, THERE IS NO CURE that they aren't getting. Remission maybe, but not cure. They also don't mention most times that surgeries can bring it on. This one did but most don't. It seems like there are so many facts left out.

Ada