Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-09-2010, 05:09 PM #1
klmullican klmullican is offline
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Smile Calmare Treatment Cured Our Son!

Hi! I'm so excited and thankful to be able to tell you about how God answered our prayers for pain relief for our 16-year-old son from RSD! He was diagnosed 8 months ago the beginning of November 2009. He's done physical therapy, 3 nerve blocks, the last one made it worse and spread, all kinds of opiods, and the SCS machine with Dr. Rhodes, which also made it worse for him -resulting electrical shocks in the nerves in his leg. We did see people who said they were helped there though. I was looking into ketamine infusion, and I heard about this new Calmare treatment which is non-invasive like Dr. Rhodes' machine, but this worked!!! We went to Providence, RI to Dr. D'Amato, who was trained by the Italian inventor of this treatment. After 10 days of treatment, our son came home with no pain! Dr. D'Amato and his staff are the kindest, sweetest people ever, and we thank and praise God for this huge answer to prayer! If you have any questions, about this, Google Competitive Technologies Calmare treatment. They have links to all the clinical studies in the US that were just released this past May and all the other info. Three major universities and several pain clinics, including Dr. D'Amato's participated in the clinical studies with fantastic results. If you have any other questions, please reply to this post. I don't know if I'm allowed to give out my e-mail address, but I'm happy to if it's okay. God bless!
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Old 07-09-2010, 05:40 PM #2
debbiehub debbiehub is offline
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Default I am Very Interested

Thanks so much for posting this information! I just spoke to Dr Rhodes the other day and am planning to go but now I am having second thoughts- Do you know if this treatment has worked with adults? Also with those with full body RSD? Do you have a contact number- I would love to talk more -

Thanks Thanks Thanks

Debbie

Last edited by debbiehub; 07-09-2010 at 06:34 PM.
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Old 07-09-2010, 06:11 PM #3
AintSoBad AintSoBad is offline
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Kim,
I don't want to rain, but I did just google the company there, and found in the first 4-5 hits, sales of the companies IPO and stock. Investors were not happy, to go as far as calling this type of thing the same as buying a lottery ticket. (As an investment goes).

So, I wonder what gives?

I hope you keep us updated on your Son's long term success? (And, I certainly do hope that's what it is!).

Also, Debbie, you shouldn't keep your email addy up here in the forum, as I was told, search engines will pick it right up, and you'll get spammed. They were right, it's true!

Pete
asb
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Old 07-09-2010, 10:38 PM #4
rachel's daugther rachel's daugther is offline
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Thank you so much for your post. My daughter just turned 17 and she has CRPS for 5 months. She did a re-hab program at RIC in Chicago for 10 weeks (2 times a week for 1/2 days) while in the program CRPS spread from knee to lower leg, ankle and foot. She had 2 nerve blocks, 1st lasted 11 days and 2nd lasted 9 days, both times pain came back full force. RIC will only do 3 N.B in a six month period, so not sure if we should do the last one. She is doing PT 3 times a week and is able to walk for short distances during the day. She just does not seem to be getting any better actually pain is getting worse. Not sure what to do from here. Thinking of 3 week Re-hab program at the Children's Hospital in Boston, Ma or doing hyperbaric oxygen therapy. Would really like to hear more about what you did with your son. Please private message me with email address, I would really like to hear more about it. It truly gives me hope!
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Old 07-10-2010, 09:34 AM #5
debbiehub debbiehub is offline
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Default Boston

My friends son did great at Bostons children Hospital. If you want her contact info PM me

Debbie
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Old 07-10-2010, 03:21 PM #6
kathy d kathy d is offline
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Wow, this is great news. I will be looking into this for sure. klmullican...where was your son's RSD located? Was it in one spot only. I read the sites for the machine but it seems like everyone who was cured had one or maybe two spots where they had RSD. I have full-body RSD. Thanks for giving us some hope!!
Thanks,
kathy d
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Old 07-10-2010, 06:41 PM #7
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Hi,

I also have a daughter that is 17 and has gone through everything as well including two rounds or Ketamine infusions. I just have one question, does insurance cover this? Or did you have to pay out of pocket? And if so do you mine posting the amount, that would be greatly appreciated.

Thanks,
Sandy



Quote:
Originally Posted by klmullican View Post
Hi! I'm so excited and thankful to be able to tell you about how God answered our prayers for pain relief for our 16-year-old son from RSD! He was diagnosed 8 months ago the beginning of November 2009. He's done physical therapy, 3 nerve blocks, the last one made it worse and spread, all kinds of opiods, and the SCS machine with Dr. Rhodes, which also made it worse for him -resulting electrical shocks in the nerves in his leg. We did see people who said they were helped there though. I was looking into ketamine infusion, and I heard about this new Calmare treatment which is non-invasive like Dr. Rhodes' machine, but this worked!!! We went to Providence, RI to Dr. D'Amato, who was trained by the Italian inventor of this treatment. After 10 days of treatment, our son came home with no pain! Dr. D'Amato and his staff are the kindest, sweetest people ever, and we thank and praise God for this huge answer to prayer! If you have any questions, about this, Google Competitive Technologies Calmare treatment. They have links to all the clinical studies in the US that were just released this past May and all the other info. Three major universities and several pain clinics, including Dr. D'Amato's participated in the clinical studies with fantastic results. If you have any other questions, please reply to this post. I don't know if I'm allowed to give out my e-mail address, but I'm happy to if it's okay. God bless!
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Old 07-10-2010, 08:41 PM #8
debbiehub debbiehub is offline
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I have been emailing Dr Damato- He told me it is not covered by insurance- the cost is $300 for the initial eval and $200 for a tx- maybe he would work with you? He seems very nice

Debbie
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Old 07-10-2010, 08:44 PM #9
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Many, many blessings to all seeking help!
My help be found! Ask for a miracle and expect them!
~DejaVu
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Old 07-10-2010, 10:33 PM #10
SandyS SandyS is offline
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Hi Debbie,

That isn't so bad! So you are basically looking at about $2,500 for the two week treatment? That was four hours of ketamine! : :Are you going to have them done? I hope you will get some relief from it. Thanks for the info. I appreciate your time.
Sandy


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Originally Posted by debbiehub View Post
I have been emailing Dr Damato- He told me it is not covered by insurance- the cost is $300 for the initial eval and $200 for a tx- maybe he would work with you? He seems very nice

Debbie
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