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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-10-2010, 08:18 AM | #1 | ||
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Magnate
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Hi I am sorry for your daughter struggles. I think I recall this girl I am in contact with going to Rush hospital for rsd care.I could be wrong though. Is this the same as where your daughter went? Though I did not have the best care there the same girl who I think went to Rush did go to Cleveland Clinic and saw the same doctor I did Stanton Hicks. Ohio is not that far so that was my other thought for you. Truly though my best pain doctor was one I found through a teaching hospital by calling the anestesolgist pain center and explaining what was going on. I feel better then my care at Cleveland Clinic,UCLA,a specialist I saw on tv about rsd etc. I hope your daughter gets relief soon.
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07-15-2010, 08:17 PM | #2 | ||
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Junior Member
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No we have not gone to Rush, RIC is the only program my daughter has gone too. We are now in the process of getting an appointment with Northwestern for a second opinion. When you say best pain doctor at a teaching hospital do you mean Rush? Thank you for your response |
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07-16-2010, 08:15 AM | #3 | ||
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Magnate
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Hi No I did not mean Rush as the teaching hospital. I meant a major hospital in your area that may be a teaching hospital because from what I read here they are more up to date on treatments. Of course you would not have the student but the doctor who deals with RSD. I did the pain program well part of it at Cleveland Clinic and saw 2 pain docs there and have mixed feelings but like I said the girl I know had good results. I was also going to try to do hbot but then decided to wait. My thought for the teaching hospital was just because I saw so many doctors for ex one I saw on Discovery channel who helped this lady with rsd so I went to see him to be let down. The one at the teaching hospital I found really spent time,took my concerns into account,looked outside the box and spent time where as like at CC it was very rushed and there was not a lot of options. Again I am not saying you should not go to CC since like sandy said her d had a good experience just my thoughts. Hang in there. |
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"Thanks for this!" says: | loretta (09-02-2010) |
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