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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-05-2007, 10:09 PM | #1 | ||
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I don't know how many people look around the rest of the NeuroTalk forum, but I just wanted to mention that there is a specific Medications forum at:
http://neurotalk.psychcentral.com/forumdisplay.php?f=72 Obviously you'll want to post here, but it may be worth while also posting any specific questions on there too - Mrs D, who is a pharmacist, looks in there often, (she is an extremely knowledgable lady) and sometimes it helps to have a wider input too. Just a reminder, all the best |
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02-06-2007, 09:09 AM | #2 | |||
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Thank you Artist! I admit, I only come here, unless my eye wanders waaaay down to the bottom of hte page and I see something interesting pop up when I post. But, I'd also like to mention a site I really like as well for medications. IT's called askapatient.com. I go there whenever I am given a new med. It's a forum where real patients post their own experience of the medications and I've found it extremely informative because the inserts you get from the pharmacy don't always list all of the side effects. The FDA doesn't require, from what I found, that all s/e's be listed if they don't turn up "often enough" during a trial. So if something "weird" is happening to me after a med change, I can go to the site and see if it's happened to other people. Or, the site will also tell me how many ppl have had the MOST of what s/e's so I know what to expect. I think it's a very informative site cuz the patients are honest.
Just interjecting my own little input.
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Hugs, LisaM ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years . ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ right Side TOS Decompression Surgery 12/2005 RSD Exacerbated after surgery Still have TOS on left side RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist |
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02-06-2007, 10:30 AM | #3 | |||
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Artist and LisaM, thanks for this great info. I used to check out other places here, but haven't in a long time.
LisaM, thanks for the name of the website that you use when given new meds. It is a great thing that you can actually find out if anyone had any unusual experiences on a med that you may have been prescribed. I love the WWW.. Love, Janet |
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