Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-14-2010, 11:27 AM #1
wswells wswells is offline
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Join Date: Mar 2010
Posts: 94
15 yr Member
wswells wswells is offline
Junior Member
 
Join Date: Mar 2010
Posts: 94
15 yr Member
Default Exhaustion

Hi, I,m having a hard time with being tired all the time, when I make a bed, I am out of breath. when I walk from my living room to my bedroom I am out of breath, that is also when my heart just goes crazy, beating so hard like it's going to beat right out of my chest. And the blood pressures stay up at around 190/98, and that is on 4 pressure pills. I never feel like I have energy, I try to do things, all sorts of things, but my blood pressure and heart rate just stay way too high. I have to use a walker so I am wondering if I just don't get enough excercise. My PT doesn't let me do too much because of the blood pressure and heart rate. I have had this since 1986 and have been thru it all, Dr. Schwartsman said that I am palliative care only, no more blocks or surgery. I am still in alot of pain so all the procedures (blocks) and surgeries really did not last. I had 3 sympathectomies years ago and they are now growing back bad, like they were before the surgeries (they were done before the Dr.s realized they were useless. I take vitamins to try to keep my strength up get b-12 shots monthly. My PM told me I am beyond other treatments. Does anyone have any thoughts on this, they would really be appreciated. I hate this, it's becoming unbearable along with all the other RSD stuff, sorry to rant, but it has been a rough time lately.
Thank you in advance
Your friend Wendy
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