Originally Posted by BabyLeilani

@dreambeliever- Yes he has had some, they're of tremendous help! It always brings his pain level down to around a 4/10. Unfortunately, they're very limited with these and the ones they give him only lasts about a day or two. I wish they can give him one that sticks longer that way he can go through physical therapy without excruciating agony. I'm also very sorry you have suffered so much with doctors as well.. Thank you for the concern and I wish you all the best!

@Sandy- Thank you very very much! We're going to try to get in contact with him asap. Hopefully he's not too booked in.

@AintSoBad- I'm so sorry you suffered so long and without a diagnosis for quite awhile. And an RSD lawyer is a good idea (God knows we need one lol), but for now we're just looking to find a good doctor for him at the moment asap. I wish you all the best in life and keep your head up!

@Gabby- I've just mapquested it and it says it's about an hour away. Not too bad, same distance travel from where we live to Washington D.C. (We live in Vienna, VA) I just told my husband about it right now and we're gonna also try and get in contact with their pain management there. Thank you for the suggestion!

@Imahotep- Very true, unfortunately my husband hasn't found the right combo yet. But we're still hoping for the best!

Originally Posted by BabyLeilani

Sorry this is so long! I just haven't vented to anybody for so long. I am new here.. My 26 year old husband has RSD on his right hand/arm and is currently an in- patient at a DC hospital. His Pain management doctors aren't much help at all. (And yes I did say "doctors" as they keep trying to pass him around as they don't know what to do with him.) He is currently the only patient in their hospital that has the highest dosage of medicine due to his pain (Oxycodone 10mg, MS Contin 60mg, Hydromorphone 4mg, Lyrica 100mg, Baclofen 10mg, Verapamil 80mg) Most of his nurses keep accusing him of being a drug addict and he's far from it. One of my questions now is: Is this too high for any of you or sounds about right? One of his pain management doctors is trying to lower his dosage to about half and I'm a bit concerned with that as he is in enough pain as it is. I'm also pretty sure that one of his past doctors mentioned that his current dosage isn't high enough for liver damage. I would like to know exactly what is the harmful amount just for knowledge?

Also just to vent, we went into his appointment a week ago to get his stitches out (to loosen his tendons on his fingers) and one of his PM doctors came in to tell him there is nothing more they can do for him besides amputation. She told him the only thing he can do for his self is to force his fingers to move before they tighten up again. And she literally grabbed his hand right there (with the knowledge of his burning pain and that he just got his stitches out) and screamed at him to move it. My husband was so overwhelmed with pain that he started crying as she held it forcibly. I started to try to reason with her and tell her to please give him a break or atleast some kind of sedation/medication before she does that. She screamed at me and told me to stop it, that this is what he needs to do. The other two doctors in there literally got quiet but didn't do anything. I know he needs to move his fingers but was it necessary for her to scream or to hold his arm/hand in such a manner? Isn't that the job of his physical therapist anyways?

I need advice/ support as I have no idea what to do anymore. I feel like he is being mistreated in his current hospital. Is there also anything we can do about the pain management doctor that I've just vented about? She is also his main pain management doctor and the lowering of medicine dosage is her idea... And I'm getting overwhelmed. I just hate seeing my husband cry (which he's been doing this whole week in his in patient stay at the hospital). He used to have such high pain toleration before his RSD diagnosis because he was in the Marines.. and when he cries I know it's intolerable. His pain scale has been a high 9 and 10 this whole week and I want it to atleast go down to a 7. (With nerve blocks it has gone down to a 4 except they're very limited with nerve blocks and it usually only lasts one or 2 days.) I'd also just like to ask if there is any other thing he can do for the burning pain as they're trying to lower his dosage?

Overwhelmed wife,
Sam