Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-19-2010, 01:55 PM #22
Jimking Jimking is offline
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Join Date: Mar 2009
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Jimking Jimking is offline
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Join Date: Mar 2009
Posts: 879
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Quote:
Originally Posted by BabyLeilani View Post
@dreambeliever- Yes he has had some, they're of tremendous help! It always brings his pain level down to around a 4/10. Unfortunately, they're very limited with these and the ones they give him only lasts about a day or two. I wish they can give him one that sticks longer that way he can go through physical therapy without excruciating agony. I'm also very sorry you have suffered so much with doctors as well.. Thank you for the concern and I wish you all the best!

@Sandy- Thank you very very much! We're going to try to get in contact with him asap. Hopefully he's not too booked in.

@AintSoBad- I'm so sorry you suffered so long and without a diagnosis for quite awhile. And an RSD lawyer is a good idea (God knows we need one lol), but for now we're just looking to find a good doctor for him at the moment asap. I wish you all the best in life and keep your head up!

@Gabby- I've just mapquested it and it says it's about an hour away. Not too bad, same distance travel from where we live to Washington D.C. (We live in Vienna, VA) I just told my husband about it right now and we're gonna also try and get in contact with their pain management there. Thank you for the suggestion!

@Imahotep- Very true, unfortunately my husband hasn't found the right combo yet. But we're still hoping for the best!
BabyLeilan, very sorry to hear about your husband going through hell trying to relieve his RSD pain, and your pain too. My wife has RSD and we live in Springfield, VA. You would think that being in and around Washington it should be easy to find a decent doctor but it was one of the toughest things I ever went through not to mention my wife Suzy who was suffering for 4 years before decent treatment.
My advice is don't waste anymore time with this current hospital. As stated before folks with RSD have different experiences that include having luck with one doctor but others with the same condition not having luck. For example, we went to Johns Hopkins and my wife was treated rudely by the nurse. We did not tolerate it and left. Others, however have had better luck at JH. My wife did receive decent treatment at GW Hospital in Washington receiving ketamine infusions, physical therapy by Doctor Chin, she is the head of their Pain Management team. My wife's pain doctor of 3 years is Dr. Bautista-Quint MD at "PainREHAB" on Duke St. near Old Town. Her number is 703-823-0063. She's a little tough but she immediately put my wife on a cocktail of drugs to bring her pain down immediately. For the first time in, what seemed like years, my wife felt somewhat normal again and was doubling her amount of sleep for the first time in two years. Don't hesitate to PM me for any questions. I pray this info truly helps your husband!

jim
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