Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-21-2010, 05:59 AM #11
gabbycakes gabbycakes is offline
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Quote:
Originally Posted by Debby View Post
gabbycakes,
question..........you said you have alot of titanium in your arm & it swells & hurts more in the heat. I have alot of titanium in my back from L2 down thru S1. And it seems my muscles on the sides of my back hurt alot more during the summer.

My question: What about the titanium during hot spells causes it to make your arm swell? Especially when the heat is on............like it is every day here since right after the 4th of July. It has been brutal here.

DebbyV
Hi Debby,

the titanuim is in my arm and elbow a very tight area so when the arm swells and tissue around the titanium gets very tight, stiff and pain. Why this happens I really don't no the scientific reason but I'm sure it's a combo of the pressure in the area and the titanium doesn't move around looking for room as I'm sure you no due to your back..

I hope I answered you question or at least helped.

Gabbycakes
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Old 07-22-2010, 09:06 PM #12
suz66 suz66 is offline
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I have been having a hard time with the heat this summer; more than usual anyway. =) I have never done well in the heat, but worse this year. My sister says that I may be starting menopause symptoms.....compound problems!! Lol! My issue is that my feet get cold and start cramping really bad and have to cover them back up but get hot and sick to my stomach with them covered. Too much info, I know;....Ha! Just want you to know that you are not alone in this. Hugs, Suz=0)
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Old 07-23-2010, 04:44 AM #13
daniella daniella is offline
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The heat and humidity in FL has been hard for me too. I try to do what I have to early before it gets so hot. A side not for people and air conditioning. For me I have my vents turned a certain way in some areas so it does not blow on me but at a different angle. Same with in the car. It does help.
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Old 07-25-2010, 12:16 AM #14
gabbycakes gabbycakes is offline
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Quote:
Originally Posted by suz66 View Post
I have been having a hard time with the heat this summer; more than usual anyway. =) I have never done well in the heat, but worse this year. My sister says that I may be starting menopause symptoms.....compound problems!! Lol! My issue is that my feet get cold and start cramping really bad and have to cover them back up but get hot and sick to my stomach with them covered. Too much info, I know;....Ha! Just want you to know that you are not alone in this. Hugs, Suz=0)
I have always struggled with the humidy more than any other climate and this year it has killed me, my arms have not felt like this is 1 and 1/2yrs and I'am actulally getting the burning again which that has been 1 and 1/2yrs also so I'am very crankly. But your point on the menopause could be for me also. My level was checked last year and it was still far away from even starting. But I go for my annual soon and I'm sure they'll do it again. Thanks for the input.

Gabbycakes
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Old 07-29-2010, 03:09 PM #15
mellowguy mellowguy is offline
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Hi Pacugirl,,your description of the awful feeling you have with the cool air is not unusual. As for me, I love the cold. Being that I live in a cold wether climate for 6 months every year, I have to say I prefer the cold to the hot weather as such we are experiencing now. But, I hate cold water and love hot water. I have been known to get the chills in my hottub at 102 degrees. The sympathetic nervous system keeps me guessing what I'm going to have at any given day. As for the limb that suffers from RSD/CRPS, it hates being exposed to anything like a blowing fan or a cool breeze during the night time. It feels like I will climb out of my skin. Now here is the weird part, we are not suppose to expose our skin to cold packs, ice cubes, or anything that cause the nerves to light up like a switchboard at a radio contest. Now having said that, I actually get a smalll amount of relief when my pain level is high and setting off a trigger point that causes migranes and nausea, when I stuff my foot into snow for about 1 minute. It instantly kills the pain and I get no chills from it. Go figure. It comes to the point when you'll try anything to kill the pain when meds and devices don't work. I think most people experience that same reaction as you do just in different levels.
For me, the meds also cause the chills then the hot flashes off and on sometimes for 2 or more days. My electric bill will prove that!
Keep your head up high and deal with the annoying symptoms as best you can. I hope you have a pain free day/night. Good luck..mellowguy
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