I have problems during summer with A/C giving me goosebumps when it hits me -which triggers the allodynia -making the burning worse. I try to put on a sweater the second I hit the store or A/C'd place, but can't have it on before that or I'd die from perspiring with the hot days. Sun shining hot on my skin is bad too.
It's a constant fine line between too hot, too cold, not wanting something against my skin or freezing without something on it.

Anyway - my question is I am also finding myself so fatigued this summer with the prolonged heat. Its hard to function. Do many people feel the same way?
I don't remember last year being so difficult.

Story of my life!!!

You just said it exxxactly!!!! you aren't alone... fan hurts because of goosebumps, but i sweat like a monkey without fan.... too hot then too cold then too hot then too cold... over and over again. Its one circle that goes around and around. hang in there....

Hannah

Same here. In fact, the very first symptom I had, before I had ever even heard of CRPS and still thought this was from my injury, was that cold air was causing me goose bumps, and for the first time in my life, goose bumps were incredibly painful.

Now I spend my nights throwing off covers because they hurt, then pulling them back on because I'm cold, then turning on the ceiling fan, turning it off, etc. No wonder I am so tired!

The heat is really doing a number on me also. I have a lot of titanium in my arm and in hot weather the arm swelles makes everything very tight and really begins to hurt. It is also making me so tired..

It's been staying in the 100's here in Colorado. I spent week before last in bed wiped out from the heat. I have CFS also and the heat just makes it so much worse.

Same here with covers, fans, airconditioners, etc. On and off, on and off.


Ada

I have been staying inside a lot here in Fla. , I have a route through the house that avoids the a/c vents(get some strange looks when I go through two rooms to get to the other side of one).....The other thing that is bothersome is the afternoon thunderstorms we have as this seems to increase my pain . Doc said the change in the barometric pressure causes this ???

You hit that one right on the head! I'm down here in Fl. and this year we were either with air condition or heat, not many days without either. I think the entire country has had a strange year(oh, that global warming) weather wise. I'm not an air conditioning person but down here you can not live without it, I just try to have the vents blowing away from.I guess we are all in the same boat, no matter where we live.
Wendy

The only good thing I can say about the hot weather is that it is keeping our pool water warm and I can do my PT in comfort...other than that I can't stand the humidity!

gabbycakes,
question..........you said you have alot of titanium in your arm & it swells & hurts more in the heat. I have alot of titanium in my back from L2 down thru S1. And it seems my muscles on the sides of my back hurt alot more during the summer.

My question: What about the titanium during hot spells causes it to make your arm swell? Especially when the heat is on............like it is every day here since right after the 4th of July. It has been brutal here.

DebbyV

Pacugirl, yes, yes and yes, this humidity has me totally lethargic. I have been taking extra vitamins and eating foods, mainly raw fruits and veggies that I know increase your energy. I am barely taking any pain meds and just dealing with the pain, to hopefully regain some energy. This is worse than the winter for me. I am sure this will pass, just hang in there you are not alone.

Jeanie