Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-19-2010, 05:17 PM #1
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Default Surgery Wednesday

I am having surgery Wednesday. It's not going to be an easy one, not a one day thing. They do know I have RSD and they intend to do a block before surgery. I will talk to the Anesteologist before I go into surgery.

They will go in at 3 different places with laproscopy and then make an incision to cut a nerve.

I had my pre-op today and she did tell me that I would not come home until my surgeon and PCP felt it was ok. I feel like I am in pretty good hands so whatever comes out of it, I feel it's meant to be. Hopefully it will be successful in stopping this left side pelvic pain.

I know a lot of people on here don't believe in surgery for RSD patients, but you just do what is needed when the time comes.

Ada
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Old 07-19-2010, 05:45 PM #2
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Quote:
Originally Posted by dreambeliever128 View Post
I am having surgery Wednesday. It's not going to be an easy one, not a one day thing. They do know I have RSD and they intend to do a block before surgery. I will talk to the Anesteologist before I go into surgery.

They will go in at 3 different places with laproscopy and then make an incision to cut a nerve.

I had my pre-op today and she did tell me that I would not come home until my surgeon and PCP felt it was ok. I feel like I am in pretty good hands so whatever comes out of it, I feel it's meant to be. Hopefully it will be successful in stopping this left side pelvic pain.

I know a lot of people on here don't believe in surgery for RSD patients, but you just do what is needed when the time comes.

Ada
I hope everything goes as planned, Ada! I thought the cutting of nerves was taboo, is this nerve causing RSD pain? What I recall is the anesteologist and or the surgeon has to really numb the nerve in order to minimize spreading even if you are in a deep sleep?
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Old 07-19-2010, 06:33 PM #3
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Best of luck with your surgery ! My pain mgmt Doc has told me if I have any elective surgeries he wanted to be involved with discussing my RSD with surgeons , treating physician , etc. . He also mentioned he would talk with the anesteologist to administer a dosage of ketamine during the procedure if possible . Just some things to consider , as only you know what is best for your situation....Take care and once again good luck !
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Old 07-19-2010, 07:52 PM #4
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Ada, like I said before, good luck with your surgeries. Try and put yiur mind in some completely relaxing place as they put you under, that might help relax you.
Try and see your insides getting the attention they need, maybe try to imagine them being healthy , just a thought. I wish you the very best care possible and hopefully a real difference in your pain. Good Luck.
Wendy
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Old 07-19-2010, 09:21 PM #5
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Default Hi

RUReady, my PCP is my RSD Dr. He has been the whole time. He knows what we are doing and will be in to check on me and a phone call away the whole time. He has actually assisted in a couple of my surgeries to see what was going on in me. My surgeon has been seeing me for 3 months so he knows my whole situation and is very up on things too. The last surgery I had, they filled the area full of lidocaine because it was too high up on my neck for a block and it worked.

Jim, this nerve is not causing the RSD pain. It's causing nerve pain. One spot so they pretty much know it's the culprit.

Wendy, I do just that. I have a positive attitude about this surgery. I know I am in good hands.

We'll see.

Thanks for the prayers. Those I will take all you have.

Ada
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Old 07-19-2010, 09:43 PM #6
Lisa in Ohio Lisa in Ohio is offline
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Ada, Best of luck with your surgery. I pray that you will find the relief that you seek and do not cause a RSD flare. Lisa
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Old 07-20-2010, 01:13 AM #7
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Ada,

God bless. Good luck. Find peace in this, you so very much deserve it! We are ALL thinking of you.

Prayers and hugs!

Kim
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Old 07-20-2010, 06:10 AM #8
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Quote:
Originally Posted by dreambeliever128 View Post
RUReady, my PCP is my RSD Dr. He has been the whole time. He knows what we are doing and will be in to check on me and a phone call away the whole time. He has actually assisted in a couple of my surgeries to see what was going on in me. My surgeon has been seeing me for 3 months so he knows my whole situation and is very up on things too. The last surgery I had, they filled the area full of lidocaine because it was too high up on my neck for a block and it worked.

Jim, this nerve is not causing the RSD pain. It's causing nerve pain. One spot so they pretty much know it's the culprit.

Wendy, I do just that. I have a positive attitude about this surgery. I know I am in good hands.

We'll see.

Thanks for the prayers. Those I will take all you have.

Ada
Ada,

Just a very big good luck...Hope to see you typing soon.....

Will be thinking of you and sending positive energy.

gabbycakes
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Old 07-20-2010, 10:35 AM #9
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Heart Ada.... good luck!!!

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Ada,

Just a very big good luck...Hope to see you typing soon.....

Will be thinking of you and sending positive energy.

gabbycakes
Ada,

I send this post with a heart filled of good luck wishes and many positive vibes..I will keep you in my prayers and thoughts... I hope it is also successful in helping you with your painful pelvic issue..I also know you have lined your ducks up nicely and have done your homework with your Dr.'s and proper avenues.. Rest at ease... Sleep my friend knowing it will all be behind you very soon...

Bless you and let us know how you are doing when you feel up to it...

Love, Kathy
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Old 07-20-2010, 04:51 PM #10
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Ada,
Best of luck & I sure hope this does it for you......ends the pelvic pain. I can't even imagine what that would be like.

As you know I have had 2 major back surgeries since RSD came to roost in my body & they did the ketamine thing during surgery for me. They bathed the whole spinal column with it & I didn't have any spread of RSD at all. And I count myself totally lucky. The 2nd surgery I did wake up in immense burning pain in my feet but well, that is because when working with L5 & S1 they had to manipulate the nerves out of the way alot & they became really really irritated. So I consider myself lucky I didn't have spread that last time.

Again Best of luck.......

DebbyV
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