Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-27-2010, 11:22 PM #11
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Andrea......I am speechless.....you did such a good job!!!!!! I freeze up when it comes times to explain what RSD is. Cant think of the words to describe it.....but you really did a great job. From the video, it looks like we are around the same age, I'm 28. Wish I was in Cali to go to the concert, but I'm in southeast US.
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Old 07-28-2010, 12:50 AM #12
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Great Job!!!

I am going to try to get to your show. School starts for me the 16th, but maybe I can leave early the 17th and check it out!!!
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Old 07-28-2010, 07:52 AM #13
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At my work there are blocks on video sites so I can't view it. At home for some darn reason a blank screen pops up. Very frustrating. I must find another computer to view this interview.
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Old 07-28-2010, 02:27 PM #14
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I would love it if you could come!!! would be great to finally meet you after 6+ years of talking!

how far are you from Santa Cruz?
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Great Job!!!

I am going to try to get to your show. School starts for me the 16th, but maybe I can leave early the 17th and check it out!!!
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Old 07-28-2010, 02:28 PM #15
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We are the same age, I just turned 27 at the beginning of the month.
I was so worried I'd end up crying... whenever I'm in front of people talking about it I usually start crying.. Surprised I didn't... maybe cause I knew it wasn't live..
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Andrea......I am speechless.....you did such a good job!!!!!! I freeze up when it comes times to explain what RSD is. Cant think of the words to describe it.....but you really did a great job. From the video, it looks like we are around the same age, I'm 28. Wish I was in Cali to go to the concert, but I'm in southeast US.
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Old 07-28-2010, 05:23 PM #16
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Originally Posted by msdrea83 View Post
We are the same age, I just turned 27 at the beginning of the month.
I was so worried I'd end up crying... whenever I'm in front of people talking about it I usually start crying.. Surprised I didn't... maybe cause I knew it wasn't live..
I know this sounds just crazy but we have no sound on our computer here at home..But I tried to focus real hard in order to read your lips..To me and from what I read here..It was a wonderful interview...Thank you so very much for all of your hard work on all of our behalfs, Andrea..

Hugz, Kathy
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Old 07-28-2010, 05:40 PM #17
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Great job!! I am trying to get my friend who lives in Santa Cruz to go to the event...

Deb
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Old 07-28-2010, 07:53 PM #18
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Im about 3 hours away, so it is no big deal to get there. I have to back to school the 18th and that is the catch cause I want to stay the night LOL!

Maybe I can tell the teachers I have a doctors appointment and m,iss the second day of school
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Old 07-29-2010, 12:06 AM #19
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Hi Andrea!!

What a terrific interview and such a unique local show in Santa Cruz!! You are so talented, energetic, brave and so giving!!

Thanks for giving this to everyone and expecially to us!! The music at the end of the show was quite beautiful!!

Andrea!! You are amazing! Thanks for everything you do!
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Old 07-29-2010, 07:42 AM #20
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Dear Andrea -

What an amazing interview! It's been a crazy few days for me and I just now (@ 4:45 am) finished listening to it.

What got me right away was the immediacy of it. Your description of our community (including "people in Australia and Canada"), the tape of Lindsay and Dr. Schwartzman (I had seen the broadcast a few years ago but until now didn't make the full connection) and finally your description of the lives of those without resources moved me to tears.

Thank you so much for what you are doing! Your sense of purpose and fortitude is amazing. And then that ethereal moment at the end of the show when you managed to effortless interweave the horror of the illness with its medical strangeness was perfect.

Finally, while I was also captured by Sam's flute at the end, something happened just at the close that may have been transformative for me. I have always been skeptical of people with a New Age persona - to the point of joining my Buddhist teacher in his open doubt of the power of positive intension or "metta" to have any change on the world except as it improves ourselves and how we therefore interact with others - and so found Moriah Fey's style a little off-putting. But then as she closed with a reference to her son - no longer of the Earth - it hit me. Viscerally. This is all about pain and dealing with it, and the genesis is just detail.

Thanks again.

kind regards,
Mike

Last edited by fmichael; 07-30-2010 at 01:21 AM. Reason: icon
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