Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-18-2013, 08:59 PM #1
alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
Default Was a crazy night in the Hospital

I was admitted into the hospital tueday evening with severe liver pain, chest pain, have been vomiting for a month now and with all that the RSD was flaring. I have full body RSD and sarcoidosis in the lungs and liver and now its spread to the stomach and then went through thyroid cancer. The other problems were everytime I would vomit like 15 minuets later I would be confused and not be able to talk and drool really bad. The ER had no ideas so they admitted me then once I got up stairs everything went nuts my nurse came in and checked my heart and it was racing so he called the on call doctor by then I had a severe fever was sweating and shaking. They did an EEG and it came back bad I was severely tacki the doctor was so scared I was going into shock, they put a montor on my heart and the whole night the nurses and doctors were running into my room as the monitor kept going off as even with 3 doses of low presser it wouldnt calm down and my fevers werent going down. My labs were fine. But it sure scared me and the poor doctor I have never seen one so scared he was just pacing back and forth in my room praying not to have to call a code. He got me on very powerful antibiotocs even though my blood was fine and the the low pressers finally brought it down enough but by that end of that night everyone was exausted as the lady next door her heart was doing the same but was low instead of high so they spent the night running like mad from room to room. I have been through some scary moments in hospitals but this was the scariest. They still dont know whats wrong only that maybe my sarcoid is getting worse in the liver and may need a new one so next week I will be transfered to philly to see another sarcoid specialist to see what he thinks he can do. At least its a little layed back tonight and hopfully my heart will let me sleep and not make the staff run in every 20 min. I am in a great hospital its the one my RSD specialist is head of pain here so all the doctors know me and they handle alot of RSD patients here, I just had to share Iam 25 and it sure scared me as I could see how scared they were for me. The doctor wouldnt leave my room he spent 6 hours pacing back and forth praying I was going into systemic shock.

Hope everyones having a better night
Samantha
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