I went to WalMart yesterday evening. This time I was just in there about 45 minutes. I wanted to pick up a printer. I had the boys with me also. I picked them up at 2:45 and we were home by 3:45. I wasn't on my feet that long.

My legs and feet hurt me all night. I finally got to sleep around 4 and woke up at 5:30. I took extra meds and put a pain patch on my hip/pelvic area but I don't believe this leg pain is coming from the RSD.

My legs and feet are cold all of the time. My feet feel like they are frostburned on the bottom and I have those electrical zaps going through my legs and feet. I compare it to the sparks a sparkler puts off going in the legs and feet. I hurt like crazy and the meds didn't do the job at all. Finally put a heating pad on my hip and then moved it down my legs to warm them up but they still felt cold. This has just started in the past few weeks. It started when I stood in my cold bathroom on the cold linoleum floor for a minute or two.

I don't believe it's the RSD acting up. I am thinking it's the Fibro or the MS. I know some of you said you had simular problems. I'm just baffled about why it just started and why it won't go away with any help. It's not leg cramps either so that bar of soap might not work. I am going to try it though tonight.

Thanks for the support and help you all have given me.

Ada

Just wanted to tell you I am thinking of you... I know you are going through a lot with this pain. It sure stinks.

You are in my thoughts and prayers!

wow...have had the same problems with my feet since i fell in the shower in dec. think it is from rsd... my feet are either burning hot or ice ice cold and nothing warms them..can't put socks on for long..they make the pain and cramping worse...it changes from electrical shocking to the feeling of having a charlie-horse from my ankle to toes and the whole bottom of my feet..worse on the left side..(as everything else always is) keeps me up all night...or wakes me from my deep, deep sleep that nothing seems to wake me from... so many questions.....no answers..... i sometimes use a small massager on the bottoms..for a very short time.. just letting you know that you are not alone....could be fibro??? i have that too... moonstar

I have ice cold feet too and I have both fibro and RSD as well......... I always assumed it was the RSD doing that...... and so did my doctor at that time.....

Mieke

I have the same thing happening in my hands, I always assumed it was RSD spread happening. I have those sparklers going off in my hands up zapping to the tips of my fingers, expecialy when I stretch to reach for something and they tingle pain alot. Zingers I call them but sparklers describes the feelings very well thanks.

The arms also ache with pain rolling through them like labour pains in that it peaks and eases, and nasty cramps too, I too have just been diagnosed with fibro as well.. I also have chronic pain syndrome and RSD, sudeks dystrophy she said is the type I have.

Question for those of you feeling this sparkly symptom.. have you any organ problems?

take care and thanks,
sandra

ps.. wellcome Mieke.

Welcome Mieke. You will find this board real helpful. There are many sweet people.


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I think that the symptoms you are descrbing sound like mine, Ada. I only have RSD. I know that cold feeling (my skin will feel FROZEN to other people, yet inside I am BURNING, along with the stabbing pain. And frostbitten is how I often describe that pain). I have an eletrical type pain shoot up my feet when I am walking (it makes it hard to walk on my feet flat, and correctly, but I try and make myself).

I also experience the eletrical feeling when I shiver or yawn, at times. It will run down my legs/ arms. Anyone else? I also have described it as a static type feeling.

I think the eletrical feeling is definately nerve pain (just like pins/needles and burning pain....
http://www.theacpa.org/nerve/pdf/Final_Brochure.pdf (differences between nerve and muscle pain)

Thanks for the feedback. The only reason I questioned it being the RSD is the difference in the pain. RSD pain is so horrible and that's what makes me think these two things don't go together.

I woke up this morning again with cold feet and legs cold and hurting. I grabbed the heating pad and put in on my feet trying to warm them. It hasn't let up much. I am having trouble walking and climbing stairs. I went for a walk earlier. I hadn't done that in a long time. It's close to 70 here today but it's looking like rain. I am just trying to keep myself going and not end up in a wheelchair.

I read the website and it's talking about cronic pain so this must come with cronic pain syndrome. I was diagnosed with that at the same time I was diagnosed with RSD, TOS, and Cronic Fatigue Syndrome. For a long time I thought that the CPS was part of the RSD but later found out it was a syndrome of it's own. Thanks for that website.

Ada

I wanted to respond to the organ problems. I didn't before because I wasn't sure what I was dealing with as far as my insides were concerned was part of what we are dealing with. But I laid down awhile ago and woke up chilled, hurting and there was things going on inside my whole body that I haven't quite figured out how to explain. I have noticed it before. I've woke up many times wondering what the heck is going on with my insides.

Can you explain what you have noticed with your insides?

Ada

This bump is for you.

Ada

Sandra,

I experience organ pain since developing RSD. I had the misfortune of passing kidney stones on about three occasions between 1988-1995, (2 from rt. kidney, 1 from left). (It was terribly traumatic pain!)

Occasionally, I get the same pain in my kidney and down into the urinary tract. IVPs show no new stones but I hurt just like the kidney stone event(s) are happening again...not to mention the groin/pelvic region pain! The first episode was enough to bring a grown man to lay curled up on the floor in pain. (From the day that first stone passed, I've had the utmost respect for women going through natural childbirth. Not that I didn't before, but the stone gave me perspective that I never would have known otherwise. )

My Neuro told me that RSD can and does sometimes affect internal organs...I'm a witness to that.