[ouchymama]

Hi,
I am a member here but don't come on too often since I haven't figured out how to do stuff......computer illiterate.
Anyhow, I was wondering if any of you have neuromas and RSD? I have two neuromas in Left foot and one neuroma in R foot. I got RSD after surgery for one neuroma that I had in let foot. After surgery, pain never went away. Had to quit work one year ago since I grew back the neuroma that was taken out plus another one. It is now so painful that I cannot describe.

Just wondering if anyone else here has same condition. I would really appreciate some feedback.

[loretta]

Originally Posted by ouchymama

Hi,
I am a member here but don't come on too often since I haven't figured out how to do stuff......computer illiterate.
Anyhow, I was wondering if any of you have neuromas and RSD? I have two neuromas in Left foot and one neuroma in R foot. I got RSD after surgery for one neuroma that I had in let foot. After surgery, pain never went away. Had to quit work one year ago since I grew back the neuroma that was taken out plus another one. It is now so painful that I cannot describe.

Just wondering if anyone else here has same condition. I would really appreciate some feedback.

Hi ouchymama, I have Rsd-15 years now following surgery, which is common. I have heard of many cases of people getting rsd following neuroma surgery. What kind of Dr. do you have?
I wasn't diagnosed for 4 years. Went to a sports injury hand Dr. and he knew right away-sent me for nuclear med test to confirm. Then I came back to my state and found a neurologist who also confirmed after more tests and found a hand dr. and physical therapy. It was too late to get full rage of motion, so have a crippled claw hand. but thankfully I am completely mobile, since I have full body rsd and internal rsd also.
Physical therapy was important as well as massage therapy helped me. When I went full body, I found a wonderful psychiatrist, who also is a neurologist and pharmacologist. So he basically is my pain management Dr. and has helped me go thru the grieving process of loosing so much, like not being able to work anymore, loss of all the sports I enjoyed, like tennis, water skiing, snow skiing, hiking, etc. I'm on a lot of meds, learned a lot about RSD and find joy in supporting others.
This is a wonderful group of caring, knowledgable friends. Please stay with us and we will help you with the computer part. What do you need help with? Just let us know. One of your new friends, loretta

[ouchymama]

Originally Posted by loretta

Hi ouchymama, I have Rsd-15 years now following surgery, which is common. I have heard of many cases of people getting rsd following neuroma surgery. What kind of Dr. do you have?
I wasn't diagnosed for 4 years. Went to a sports injury hand Dr. and he knew right away-sent me for nuclear med test to confirm. Then I came back to my state and found a neurologist who also confirmed after more tests and found a hand dr. and physical therapy. It was too late to get full rage of motion, so have a crippled claw hand. but thankfully I am completely mobile, since I have full body rsd and internal rsd also.
Physical therapy was important as well as massage therapy helped me. When I went full body, I found a wonderful psychiatrist, who also is a neurologist and pharmacologist. So he basically is my pain management Dr. and has helped me go thru the grieving process of loosing so much, like not being able to work anymore, loss of all the sports I enjoyed, like tennis, water skiing, snow skiing, hiking, etc. I'm on a lot of meds, learned a lot about RSD and find joy in supporting others.
This is a wonderful group of caring, knowledgable friends. Please stay with us and we will help you with the computer part. What do you need help with? Just let us know. One of your new friends, loretta

Thanks Loretta for answering my comment. I just wanted to know what other people may have done if they have stump neuromas plus new neuroma and RSD since the RSD prohibits anymore operations.
Also, on this site, I can never find a live chat. I am probably doing something wrong. And, is the page where I posted my comment the right page to do that? And, how do I go about getting friends? You are my new and only friend........lol..... thanks so much. I appreciate it.
How can you be mobile if you have full-body RSD? I have been to many doctors. I have now settled on my own primary care doc and my podiatrist. They both handle my pain with meds.......but the flares in my foot take a lot out of me.
Thanks again, Loretta. Talk to you soon.

[dreambeliever128]

I have Morton's Neuromas in my right foot. I opted not to have surgery but I have a good foot Dr. He put shots in my foot and the last one has lasted about 5 years. They hurt but they help. He used Lidocaine.

Get you some good shoes. I like New Balance better then any I have found.

Ada