[dreambeliever128]

Dear Women In Pain Community,

For Grace spokesperson, Cynthia Toussaint, will appear on tomorrow's (August 19th) Good Morning America.

The segment will highlight the FDA's consideration to approve the antidepressant, Cymbalta, for the wider indication of chronic pain. If approved, it would be the first antidepressant cleared for chronic pain.

GMA airs from 7 to 9am. We're told the segment will be teased and shown at 8am.

Best,
John Garrett
Director, For Grace


For Grace
Dedicated to Ensuring the Ethical and Equal Treatment of All Women in Pain


forgrace.org

[AintSoBad]

Thanks for this!
I don't actually get network TV, I'm on hulu.
So,
if you see it posted anywhere, could you and would you kindly let me know?

Thanks, Ada!!

My wife gets everything, on five of my tv's. (Of course I owned them all before I met her)....
Now, Everything's hers.......
Women have ALL the legal society on their side..... We need a new thread, hey?

Men in Pain, too, Right? They never usually 'Get' That!
Thanks again!

Pete

xo

[gabbycakes]

Originally Posted by dreambeliever128

Dear Women In Pain Community,

For Grace spokesperson, Cynthia Toussaint, will appear on tomorrow's (August 19th) Good Morning America.

The segment will highlight the FDA's consideration to approve the antidepressant, Cymbalta, for the wider indication of chronic pain. If approved, it would be the first antidepressant cleared for chronic pain.

GMA airs from 7 to 9am. We're told the segment will be teased and shown at 8am.

Best,
John Garrett
Director, For Grace


For Grace
Dedicated to Ensuring the Ethical and Equal Treatment of All Women in Pain


forgrace.org

Thanks for the tip. I will definitly watch it.

I'm surprised that Cymbalta is being pushed by the FDA so hard for Chronic Pain. I understand the concept behind all these anti-depressants helping with really nerve pain not all chronic pain conditions. But I could not take Cymbalta again, I did try it, or any other type of drug in that class. Honestly I never reacted to any of them well and I feel they changed my whole personality and did absolutely nothing for pain in my case..

I have heard of "forgrace.org" and have seen her on the Discovery Channel and now has a director working for her. I know her organization has done much to get the word out for RSD. Just hope they don't have a deal with the Cymbalta manufacturers??? For drug manufacturers it's always about dollars and profit. I think Cymbalta is a dangerous drug and I have heard the same from my doctor, all be carefull. This is only my opinion.

Gabbycakes

[hurting]

I saw the segment this morning it was O.K. seem to be leaning towards more caution about how the FDA may pass this for pain relief use. Seems that the FDA is not totally sold on this idea.

My PM Dr. had me try this for nerve pain after 8 weeks I pleaded with him to take me off of it which he agreed. I was a zombie on this med. air head, really bad headaches, could not stay awake, real short attention span, could not urinate but once every other day, could not drive while on it, could not talk to people without sounding mean and like a idiot, and more but most of all had very little nerve pain relief. To me this drug is evil. If I would have continued to have taken it I would have ended my life by now because of how bad it made me feel. I was hollow person.

I have been off for 3 weeks and I feel like a new person. I can deal with people again, drive on short trips, not pass out so easily, headaches are gone, can urinate again.

I feel really bad for the folks that have to take this med. I hope you do not have the side effects that I had.

[dreambeliever128]

I didn't get to watch it but did get an email from a friend that said it seemed to be leaning toward using it more for Arthritiis.

I have tried it already years ago for depression and couldn't handle the side effects. I do know though that what doesn't work for one works for another.

My question would be though if it's already approved by the FDA for depression why would they not let them try it for pain if it has shown some signs of working.

It's interesting how they let some companies get meds out there so fast and others not. Vioxx comes to mind of how fast it came out and how many people it screwed up.

Ada

[daylilyfan]

I felt terrible on Cymbalta - I felt depressed when on it. I could not urinate either. Did not help with pain AT ALL. I was on it three months. Finally the urination problem was just terrible... I was put on a diuretic and still having problem. Dr. kept telling me it's supposed to work! I have had no success with any anti-depressant. Only thing they do is make me feel depressed and make me gain weight. Recently was talked into trying Savella. Same thing - could not urinate.

I do not understand why they cannot figure out something to help people in pain. I really do not.

[SandyRI]

I've been on 60 mg Cymbalta for quite a while - perhaps a year and a half. I also take Topamax (I think 100 mg 2 times a day). I tried to wean off of the Topamax after I started getting ketamine infusions, but my migraines started to come back and it was just awful. So I went back on it and so far it's working well.

Personally, I haven't noticed any problems with the Cymbalta. I honestly don't know whether it's doing much, because I haven't tried to go off of it like the Topamax. I've read here on this board that it's hard to get off of, because you can go into withdrawal. But when I forget to take it I don't notice any problems, so perhaps for me things will be different? Who knows...

Since I know I have issues with depression because of my RSD, I don't want to go off of an antidepressant without another one line up to take its place. And because I am somewhat stable right now, I don't see any reason to change my line of meds. But it's nice to get the heads up regarding possible side effects. Thanks for the thread.

Peace, Sandy

Originally Posted by daylilyfan

I felt terrible on Cymbalta - I felt depressed when on it. I could not urinate either. Did not help with pain AT ALL. I was on it three months. Finally the urination problem was just terrible... I was put on a diuretic and still having problem. Dr. kept telling me it's supposed to work! I have had no success with any anti-depressant. Only thing they do is make me feel depressed and make me gain weight. Recently was talked into trying Savella. Same thing - could not urinate.

I do not understand why they cannot figure out something to help people in pain. I really do not.

[edever34]

I have been on Cymbalta strictly for nerver burning pain-60 mg at bedtime and have to say it has helped a GREAT deal and no side effects taken at bedtime. So I am glad it is being considered for nerve pain.-Carol

[SandyS]

My daughter takes cymbalta, and she is doing really well on it. Her burning pain is much better...I feel her moods are better as well. I can't say that it is the miracle drug, but it is certainly helping.
Sandy

[dreambeliever128]

Like any med, what works for one doesn't work for another. If it's working why mess with it?

My biggest thing with side effects is what might be long term and what isn't.
I do know with Phenergan they are saying that you can have jerks and tremors and they can be long term so I only take it when I have to.

It's important to keep the depression under control too. Depression makes the pain worse I believe, you just seem to notice it more because you lay around with nothing to do but to think about the pain along with being depressed.

I can't take any of the depression meds so I live in Councelling. It works for me as well as the meds. I just have to take the Councellor once in awhile not everyday. LOL I'm glad to hear it is helping someone with nerve pain. That's a start.

If it's not broke, don't fix it.

Ada