I know that crps type 2 is linked to nerve damage and is the main cause for crps/rsd.

For the folks here with damaged nerve(s) over time have they healed and improved or stayed the same or got worst.

Do many of you have a SCS for your nerve pain and how well does this work for that pain. The reason I ask is my PM wants to do the SCSfor my nerve pain that I have throughout my right arm and right upper back.

Thank you in advance for your replies.

Dennis

The way my wife, who has upper and lower RSD, describes her RSD pain is that it changes. Her skins changes, nails, color. She said her pain is not the same now, after 8 years, but different, not as intense but very unpleasant non-the-less.

Dennis, I have suffered from RSD for years. I had the sympathetic blocks done and they worked well until recently when a car wreck thru me back into RSD. I had my first sympathetic block done this week and will continue to have them until I hopefully go back into remission.

The shots are somewhat painful, but if you have a good Pain Management Dr., they do help. The problem is, the longer you are in RSD, or if you have been in it before, the harder it is to get you into remission. So don't delay getting treatment. Hope you get better soon.

Renee'

I have Type 2. After quite a few blocks that provided minimal relief, we've opted to give the SCS a try. My trial is in two weeks. Can't wait, I'm so very hopeful that it will work.

Type II, no SCS. Suspected CRPS diagnoses at 4 weeks post-injury, SGB's starting at 6 wks for beyond intractable pain. Getting, I lost count, #10??? SGB in 2 wks. They still help. Lucky me. I hate them, I hate them, I hate them and how they make me feel immediately afterwards and for several week post, but they still help. For a few months anyway...

Dennis, Had compressed nerve in arm causing RSD and had surgery to decompress nerve(they didnt know at time of surgery that it was RSD too). At 1year they realized i had RSD and had stellate ganglion blocks-4-5. Had SCS trial but got stim in whole body and feared causing spread of RSD. Read a lot of pros and cons of SCS. Unfortunately, i now at 2years have full body RSD. momof4

Hi Dennis - check out Neurotalk's SCS board - it's under "Health Conditions" then "Medicines" (I'm pretty sure).

The best of luck to you.

Sandy

Hi Dennis and Welcom to NT. I have type 2. Got RSD following surgery, but wasn't diagnosed for 4 years. For the frozen shoulder (really RSD) I had physical therapy right away and I also had massage therapy 100 therapies each. Went into remission for a year or so. My therapist said it may go into other shoulder, (I thought that sounds strange, as my surgery was on my left side) and it did. More therapy and another remission for a year or so. While water skiing felt nerve pull in left hand-diagnosed with rheumatoid arthritis. althought tests negative. I knew that was wrong diagnosis, went to hand ortho a couple states away and in 1 minute diagnosed rsd. Sent to nuclear med test for confirmation. Went into therapy, but because of delay have claw hand. moved to right hand, both feet full body, internal-15 years now.
From what I have read, I personally would not have SCS. Some have had success, but a lot have had spread after the procedure. Having full body is tough,, internal even worse.But I have a good Doc, the last 6 years and am mobile and thankful for that. We all have flare ups, and good days. Managing stress is important, exercise, diet, psychiatrist has helped me tremendously accept this, he is also my neurologist and pharmacologist. Having the meds that work for you is important. My Doc is very conservative, so I am able to drive, in the afternoons.
The support from the friends here is immeasurable, so compassionate and have learned so much. Am thankful for friends and family. Have learned not all understand or can deal with a chronic pain disorder like RSD. Have learned who and how much to say.
Welcome again to NeuroTalk, one of your new friends, loretta