Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-13-2010, 07:47 PM #1
renhenne renhenne is offline
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Join Date: Aug 2010
Location: Florida
Posts: 43
10 yr Member
renhenne renhenne is offline
Junior Member
 
Join Date: Aug 2010
Location: Florida
Posts: 43
10 yr Member
Unhappy relaxation sites for RSD

I have suffered from RSD for 6 years now and it took Drs 4 1/2 years to diagnose. Mine started with a torn Achillies tendon surgery that went awry from a BAD Dr.! I had 4 surgeries to repair the achillies with 11 tears and horrible pain to follow.

I had "friends", family & Dr's tell me I was just looking for drugs, seeking attention and Dr's tell me, "don't worry, you won't loose your leg today" (when I fought like hell to keep my leg attached from a severe MRSA infection.

My pain was so bad, for so long, that I was actually starting to contimplate amputation! NO JOKE!!! I didn't sleep more than 2 hours at a time and was trying to raise my 2 children.

I was on crutches so long, that I now have permanent nerve damage in both arms, carpal tunnel and thoracic outlet syndrome in my right arm. I can never use crutches or a cane again and am on permant dissability. I was at the end of my ropes and yet doing everything I could to keep a smile on my face and pretend all was well.

Then I went to a wonderful Neurologist who looked at me and said, "you are not insane, you are in pain". I cried and hugged him. Music to my ears. I began sympathetic nerve shots and went into remission only to have a BOZO t-bone my car in May and send me back into RSD and give me severe whiplash.

I am back in RSD but the Dr's didn't diagnose it until this week! Again, it was "in my head". Ugh! I started sympathetic nerve shots again for my RSD this week and go back next week for shots in my back for my whiplash.

Ny neuro says that it will be even harder to get me out of RSD this time than last and it took a year and a half last time. I am frustrated and tired. Anyone know any good places for relaxation exercises on the web?
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