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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-21-2010, 09:38 PM | #11 | ||
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to the saloon.. I wanna to go!!!! Love... Kathy:grou phug: |
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"Thanks for this!" says: | loretta (08-24-2010) |
08-22-2010, 08:08 PM | #12 | ||
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We will have to set up a date!! Oh Wait ! I don't date, gave it up for Lent five years ago and discovered life is better without taking care of a man again. Plus I really like all the extra closet space. Anyhow, hopefully sometime in the near future maybe we can all go to the saloon and the salon when they find a cure for this crazy a-- disease. Cheers, Lisa
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"Thanks for this!" says: | loretta (08-23-2010) |
08-23-2010, 10:16 PM | #13 | ||
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You are so funny, I enjoy your posts, your friend, loretta |
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08-26-2010, 10:08 PM | #14 | ||
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i have it in my scalp too.
what is weird lately is i had a pump put in and as the doc turns up the pump my scalp goes numb (the same feeling that your cheek feels like when you leave the dentist after a fiiling was put in). i also get the lumps and red bumps along with the extra sweatting. i have to carry a hand held fan to all my appts. mike
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Hoping you feel better, ALASKA MIKE ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004 |
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"Thanks for this!" says: | loretta (08-28-2010) |
08-27-2010, 06:54 PM | #15 | ||
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Question: Has anyone ever read it spreading to the scalp? Or has your Dr. confirmed that yes it can spread to the scalp? I am due to see my pmDr. again in a couple of weeks but i havent found it written anywhere. But I sure know the burn and sweat. momof4
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08-28-2010, 02:09 AM | #16 | ||
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Yes, my Doc who I have been seeing for 6 years confirmed my lumps and red dots are from RSD in my scalp. He is a neurologist. Take care, loretta
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"Thanks for this!" says: | RNcrps2 (08-28-2010) |
10-15-2010, 10:16 AM | #17 | ||
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10-15-2010, 10:24 AM | #18 | ||
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07-23-2013, 01:21 PM | #19 | ||
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Has anyone been given treatment that works for RSD in the scalp? My hair just coming out by follicles when I touch it with my hand. My scalp is hot and burns really bad. My hair continues to grow back and the small bumps are under the skin. Bad head aches and pain around my eyes. My memory is leaving and sometimes I get very confused. |
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08-26-2021, 02:45 AM | #20 | ||
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Hi,
I've had RSD for 15 years also, spread throughout my body. I'm having the same issues with my scalp .. Pain when I moved my fingers through my hair, burning scalp, itching.. and I was diagnosed with lichen planopilaris. Amazing.. I don't feel so alone after reading all of this. I'm sorry for what your going through. RSD is truly awful. Especially when it gets to your head.. Literally.. |
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