Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-19-2010, 08:11 AM #1
Lorraine1955 Lorraine1955 is offline
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Lorraine1955 Lorraine1955 is offline
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Help Dr. Getson

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Originally Posted by RNcrps2 View Post
I was afraid someone was going to tell me that. I have heard of some saying they have it in there head but mine is definately scalp- and i havent been able to brush my hair good because it hurts too bad- i look a mess. You know my RSD went from arm/hand/shoulder/feet legs/face/other arm/back and now scalp. I know what it is but i still have to ask-i guess i dont want to believe it.

I heard Dr. Getson in NJ does ketamine and is good.
Hi my name is Lorraine and I have RSD for 14 years. My doctor is not aggressively treating me and I'm in a lot of pain. Right now he has me 300mg of Avinza and he will not give me breakthrough meds. I was on oxy-ir for breakthrough, but Purdue Pharmaceutical stopped manufacturing it and they haven't replaced it. I was on oxycodene, but it did nothing for me; that's why he upped my Advinza from 270mg to 300mg (big deal)! Please could I have info on Dr. Getson, I live in Brick, (Ocean County), NJ. Thanks!!!!
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loretta (08-24-2010)
Old 08-19-2010, 09:02 AM #2
SandyRI SandyRI is offline
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Dr. Getson is in Marlton, his waiting list is nowhere near as long as Schwartzman's and I think he is wonderful. He actually trained at Drexel with Dr. S and substantially all of his practice is devoted to RSD. I had 22 low dose ketamine infusions with him between mid April and mid July of this year. Last week I switched to a local doctor that has started to offer them in RI. But it's not the same - I loved Getson and will miss his expertise and his facility very much.

He is located at 100 Brick Road, Suite 206, Marlton, NJ. (Right off Rte 73). His phone number is 856-983-7246.

The best of luck to you. Sandy

Quote:
Originally Posted by Lorraine1955 View Post
Hi my name is Lorraine and I have RSD for 14 years. My doctor is not aggressively treating me and I'm in a lot of pain. Right now he has me 300mg of Avinza and he will not give me breakthrough meds. I was on oxy-ir for breakthrough, but Purdue Pharmaceutical stopped manufacturing it and they haven't replaced it. I was on oxycodene, but it did nothing for me; that's why he upped my Advinza from 270mg to 300mg (big deal)! Please could I have info on Dr. Getson, I live in Brick, (Ocean County), NJ. Thanks!!!!
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bigsav32@yahoo.com (10-15-2010), loretta (08-24-2010)
Old 10-15-2010, 10:24 AM #3
bigsav32 bigsav32 is offline
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Quote:
Originally Posted by Lorraine1955 View Post
Hi my name is Lorraine and I have RSD for 14 years. My doctor is not aggressively treating me and I'm in a lot of pain. Right now he has me 300mg of Avinza and he will not give me breakthrough meds. I was on oxy-ir for breakthrough, but Purdue Pharmaceutical stopped manufacturing it and they haven't replaced it. I was on oxycodene, but it did nothing for me; that's why he upped my Advinza from 270mg to 300mg (big deal)! Please could I have info on Dr. Getson, I live in Brick, (Ocean County), NJ. Thanks!!!!
thanks,LORRAINE,for putting that out there,i'm in monmouth county red bank NJ,had my share of doctors an i to will be giving DR. getson a call.looking for an understanding doctor
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Old 07-23-2013, 01:21 PM #4
RSD2 RSD2 is offline
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Frown RSD in scalp

Quote:
Originally Posted by Lorraine1955 View Post
Hi my name is Lorraine and I have RSD for 14 years. My doctor is not aggressively treating me and I'm in a lot of pain. Right now he has me 300mg of Avinza and he will not give me breakthrough meds. I was on oxy-ir for breakthrough, but Purdue Pharmaceutical stopped manufacturing it and they haven't replaced it. I was on oxycodene, but it did nothing for me; that's why he upped my Advinza from 270mg to 300mg (big deal)! Please could I have info on Dr. Getson, I live in Brick, (Ocean County), NJ. Thanks!!!!

Has anyone been given treatment that works for RSD in the scalp? My hair just coming out by follicles when I touch it with my hand. My scalp is hot and burns really bad. My hair continues to grow back and the small bumps are under the skin. Bad head aches and pain around my eyes. My memory is leaving and sometimes I get very confused.
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