Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-20-2010, 02:16 PM #1
lorigood243 lorigood243 is offline
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Join Date: Jul 2010
Location: Northern Virginia
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lorigood243 lorigood243 is offline
Member
 
Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
10 yr Member
Default What questions do i ask?

I have internal RSD caused by several surgeries and i have to deal with 75lbs of abdominal swelling. at this point the doctors hav no clue how to get it off me. I take prednisone to keep it in check but it doesnt remove it, lasix doesnt either.

I take methadone a very small dose and use a fentanyl patch which has been a life saver, i also take neurotin. I am going to a new pain mgt specialist who is familiar with RSD at GW Hospital in Wash DC. I first go for a consultation, no treatment on that day. This doctor does ketamine infusions.
Im scared, will i feel like myself after an infusion? will i be able to drive? Will i get the infusion and stop wearing the patch? I was taking percocet and oxycontin for 5 years and it didnt handle my pain. I am finally pain free and afraid to have pain again. what exactly does a ketamine infusion fel like and what does it do? what questions do i ask the doctor?

Thank you!
Lori
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Wishing you a day of pain free movement that turns into forever!
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