Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-30-2010, 08:00 AM #11
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Heart But...

Quote:
Originally Posted by yiisd View Post
I've heard nothing but good things about the pump and mostly negative things about the SCS - either after a while or soon. It is my intention to go for the pump when the time comes I no longer can take oral Morphine.
Good Luck and I would certainly ger rid of that SCS in exchange for the PUMP. My very good friend has the SCS and is changing for the Pump which she used to have but her All Knowing Doctor removed it because he said she had had it too long and replaced it with a SCS which he said was "just as good". She has a few choice words for him and intends to return to the pump as soon as possible.
Take Care,

Would someone benefit from the pump if you have whole body RSD.. ???? My RSD is in many places...not just one central spot..

Thank you all for your posts... Yur lovely people..

Hugz, Kathy
keep smilin is offline   Reply With QuoteReply With Quote

advertisement
Old 08-30-2010, 09:52 AM #12
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

This is strictly what I've read. Yes it does work for those with full body. In-fact more so than the SCS in which it mainly focuses on lower limb RSD opposed to upper and lower. I could be misinformed.
Jimking is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (08-31-2010)
Old 08-30-2010, 11:59 AM #13
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
Default Sorry, we're not talking about switch out option

As much as I wish they could just switch out a couple components for an easy switch over, these are two vastly different type systems.

A morphine pump involves a hockey puck sized device that's implanted in a pocket that's sewn under your skin usually the left side of your belly where the new pump is slid into place. They then run a catheter (tube) through the inside middle part of you body where it's then sewn directly into your spine where it mixes with your spinal fluid. It's refilled as needed by using a template that's placed on top of the sealable refill hole.

You will have a peach pit sized knot on your back for what could be months following the install along with the healing on the front side where it's all stapled into place.

With your extensive documentation showing that you can't take oral medications, but that you can a tolerate a morphine drip, insurance will be more likely to pay the $30,000 price for this amazing piece of technology. As of the last time I checked, refills currently run $1,500 or more a pop.

Thanks to you doing your homework, I'm sure you and your doctor will talk over the pros and cons of this possible pain management option. Keep searching for solutions and I know you'll find one that works best for your needs. Bob.

Quote:
Originally Posted by keep smilin View Post
I remember Mike had mentioned he has a pain pump..So in my little brain I am just entertaining the thought of removing my SCS and to have a pain pump implanted..Reason being, as many of you know..I am not able to take any pain meds oral..NONE! But by drip I can withstand morphine...not orally.. and my SCS just lives in my left hip and not able to use it....so my next question is.. what kind of a procedure would it take to do this switch?? The 5 day sleep is not possible for me either due to ins. denial due to so callled experimental use of the Ketamine....over and over..so this may be an option for me.. AND set me straight..am I thinking correctly..Talk to me family..

Love, Kathy
bobinjeffmo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (08-31-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Do you have a SCS or Pain pump? Jomar SCS & Pain Pumps 89 10-16-2018 04:55 AM
SCS vs. pain pump msdilbert2 SCS & Pain Pumps 27 11-06-2010 12:06 PM
getting pain pump and maybe a new job lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 4 01-17-2010 01:01 AM
Pain pump frogga Reflex Sympathetic Dystrophy (RSD and CRPS) 3 09-27-2007 03:23 PM
pain pump AJSG Reflex Sympathetic Dystrophy (RSD and CRPS) 12 03-13-2007 12:12 PM


All times are GMT -5. The time now is 09:06 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.