[agonyannie]

I have had complex regional sympathetic dystrophy since surgery Dec. 23, 2004. It was not diagnosed however until July 2006. I have had every opioid; anti convulsant, pain pump implants, and finally a dorsal column stimmulator. NOTHING has worked and I continue to suffer a searing, burning pain in my trunk. I do not have RSD in a limb, but all over my body. My pain is so bad that I developed Shingles (on my face) in December and never even knew it. I thought it was "just a rash." Now I am having difficulties with my insurance carrier METLIFE which believes I can go back to work even though social security considers me totally disabled. HELP--will there ever be something that works to relieve my pain? Has anyone ever gotten better? Why do so few physicians know about this disease? And how do you prove you even have it since pain is "psychological." thanks