NeuroTalk Support Groups - outpatient ketamine infusions

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - outpatient ketamine infusions (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/133031-outpatient-ketamine-infusions.html)

Quote:

Originally Posted by Dawsonfive (Post 1120232)

What hospital in VA are you getting the infusion? I've been trying to find a dr in or close to va that would let me try ketamine for chronic pain. Any info you'd be willing to share, is greatly appreciate!!

Dawson. Send me a PM.
Im not having it done at a VA Hospital because they don't even do this yet! Friggin place just started doing acupuncture 2-3 years ago so forget about seeing anything like this for YEARS! :eek:

The Dr I am seeing is in civilian sector but is a Retired Navy Doc who treated thousands of troops at Walter Reed. He is taking new patients with insurance and depends on their background. If you could give me a little of that via PM I will let you know if he's your guy ok? We start first treatment mid February. He does all the other Pain Management stuff as well. Just gave me a Radio Frequency Ablation last week which was perfect and done unlike anyone who's done it before too. Best Doc Ive met hands down! :D

Where you at in Virginia too btw? Im in Northern VA.

Looking for CRPS doctor is DC area

Quote:

Originally Posted by Gunny Fitz (Post 1120030)

Was lucky enough to discover a new Pain Management Dr. who spent last 7 years as the Director of ALL Pain Treatment at the Walter Reed / Bethesda Military hospitals as a Navy Commander - so you KNOW this guy has seen EVERY type of injury and treated thousands of troops with medical matters similar to mine (I was blown up by an IED in Iraq which left me with TBI, PTSD, and severe Cervical Spine damage!) I realize you may not be from military but this is what I learned.

Hi Gunny, I saw your post here and I am looking for a doctor who treats CRPS in the DC area. My pain doctor in Bethesda retired last year and I've been in a free fall trying to find a new doctor ever since. I was dxed with CRPS in 1990 after hand surgery, but it spread to my right foot now. I read several years ago about ketamine being used for soldiers at Walter Reed, perhaps it was because of your doctor. Would you mind sharing his name? Thanks so much, Darcy

Quote:

Originally Posted by Darcyreid (Post 1127354)

Hello Darcy-

I sent you all the info so please confirm with me somehow that you received it asap ok? This Dr. is absolutely AWESOME in every way too! :D

Be well buddy!

Gunny

Quote:

Originally Posted by Gunny Fitz (Post 1127361)

Hello Darcy-

I sent you all the info so please confirm with me somehow that you received it asap ok? This Dr. is absolutely AWESOME in every way too! :D

Be well buddy!

Gunny

Thanks, Gunny, just went online here to see if you got my message. This was my first time posting on Neurotalk, so I'm not sure where to look for all the information you sent me. Did you post it somewhere? I can send you my email address if that would help.

You be well, too!

Quote:

Originally Posted by Darcyreid (Post 1127422)

I don't mean to be a bother, Gunny. I got a message from one of the moderators who said I don't have access to private messages yet. I need to post a few more messages so I will be able to send them and to receive them.

I was so glad to hear how helpful he has been to you. This is such an isolating disease. You need someone to have your back.

Best,
Darcy

Ok i understand. But you didnt get an email or anything from me with all that info?
When I go to your screen name and the drop down menu where it usually says "Send a Private Msg" yours says "Send an Email" so i filled out that box and sent it days ago. I would check your junk folder on the email you used to sign up here first ok?

The Doc is just starting his civilian practice after getting out of Navy (Walter Reed) and would be very glad to obtain new patients as referrals from me. Hope we can get you the info somehow?

Not in junk file

Good Morning Gunny,

No, I checked my email junk file yesterday and today. Nothing, there.

My Neurotalk drop down menu only has three options as of now, none of them link me to being able to send or receive private messages. On your tagline, the only thing I could do was 'friend' you, so I did that just in case.

The moderator did email me last night to say if I post some more I will have access to private messages, but I don't know if that means your message will come through then.

I'm sorry to cause you so much work. Is it possible just to give me his name and address? When I call in to book an appointment I can tell the office that you referred me.

If that doesn't work, I have no problem posting my email address here. It's been so long now since I've had a doctor and I feel like I falling into the abyss.

Hope you're having a good day. These snow day wreak havoc on me.

Best,
Darcy

Darcy
you should be able to PM and also to receive PMs

It's not a good idea to post email addresses on the forums due to potential spam

Gunny
you are fine to post the name and office contact info of the doctor here

Thanks Chemar!

Darcy- I received your PM and replied back with EVERYTHING YOU NEED buddy!

Please keep me posted on how things work out now. Best wishes to you!

Ketamine infusions, question about your doctor.

Quote:

Originally Posted by daylilyfan (Post 696563)

I went up to Cleveland Clinic the other day. My doctor there really wants me to try ketamine infusions, once a week for several weeks. I do not think my insurance will cover it. Even if they do, they won't cover doctors fee, or the fee for the outpatient room, and what they will cover will only be 70%. And, I still have nearly $3000 to meet on my deductible.

I have not worked since December, filed for disability in May. When I filed, I went in to the office to do it, and the woman there who helped me file, back dated my filing to well before I stopped working, as my employer had to make a lot of adjustments the last year I was working due to my RSD. I did not quite understand what she was doing, but it sounded like my date of onset of disability would preceed my date of stopping work... which would mean my date of being eligible for medicare would be sooner.

Now I am still on Cobra.

I am wondering if anyone has had Social Security Medicare cover ketamine as outpatient.

I am thinking I will wait to see if I get disability first time (yeah right, I know, chances are slim)... I should hear something end of Oct. or in Nov. Then, if I do, wait to get Medicare before getting ketamine. I've had RSD almost 10 years, what is a few more months wait.

Otherwise, this is going to cost me a lot of money I just do not have.

Hi, I'm brand new to all of this and I don't know exactly how it all works but I have a question regarding your post. I am currently getting ketamine infusions, but I've needed to travel out of state to receive them and I'm desperately trying to locate a doctor in Ohio who uses ketamine infusions.. Could you please give me the name of the doctor at the Cleveland Clinic who wanted you to try the IV Ketamine Infusions? Thank soo very much for your help.